[zorro1]

Since a rather dramatic lessening of PN symptoms in a short time frame I have been able to make some very relevant comparisons in regards to movement of my legs, toes and hands falling a sleep ( when I sleep)

To put it in perspective my PN symptoms have reduced by around 70% in several months since starting a clean diet and finally, religiously sticking to a supplement regime recommended by MRS D and many others here a great website that goes where no doctor dares to go

When I was at my worst the PN pain fluctuated between 5-8/10 ( my pain levels are conservative as I have high pain tolerance) and the odd thunderbolt screaming through all toes at 12/10 . This is apparently called a "flare" but for me every flare created more numbness and further PN travel.

When these flares were at their worst my PN affected areas would turn light pink/red and I could see it clearly under the toe nails.

During this time I noticed there was a lot of effort needed to move my toes and in some sitting /laying positions I could barely move them. Also noticed the gradual decline in leg strength to the point where 12 mths ago after booking a room on line and not checking for lifts I ended up needing crutches to get down the stairs.

I also have PN in the hands and particularly finger tips and started to habitually keep my hands in a semi fist with with fingers curled in to reduce the symptoms

Now what I did find out was that the above symptoms can improve quickly. I was under the impression that progressively disabling PN ( im long fiber) was difficult to stop let alone reverse. I can emphatically state that this is not the case. The above leads me to believe that "flares" are a result specifically due to inflammation of the nerves and those that have strong permanent PN pain maybe in constant state of inflammation

This inflammation some how affects the message the brain sends to the feet and distorts it causing difficulty to move/walk along with terrible burning. I know this for sure due to observations of myself in a relatively short period.

I still have problems, my feet are still numb with light feeling although my hands improved some some what. The big difference is my ability to walk with a normal gait now where previously I used to stomp and stumble around like a drunk. There is no pain when I walk except if I push myself . I still get some burning but only light on a 1 or 2 but the dreaded flesh eating worms have completely gone along with the thunder bolts

Another reason I believe that it may be inflammation is my addition of 10mg Predisnone daily

Thanks to lift your hands thread on diet got me thinking.

Im posting this to gain some further opinion on why there can be strong improvement without the need to regrow nerves at 2'/year. Also to encourage others to try everything at your disposal because it can be just a little change like gluten free diet ( im doing this) or something in a Vitamin supplement that may replenish the damaged/inflated nervous system.