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Old 12-29-2009, 10:09 PM #18
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cyclelops cyclelops is offline
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Join Date: May 2007
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cyclelops cyclelops is offline
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Join Date: May 2007
Posts: 2,049
15 yr Member
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They have brought up Rituxan to me, but I am scared as I had Lyme, and I am worried about two things, one is a mouse chimeric monoclonal antibody...(Borrelia the organism that causes Lyme spends part of its life cycle in a mouse) and two, if I cause severe immunosuppression and the Lyme or some other germ roars back....then what. So, I am not sure what to do. Human monoclonal antibodies will soon be out and I wonder if I can wait until that happens. If not, then I will have to try Rituxan, and take the risk.

My doc said they are using Rituxan for neuropathy of sarc, with good luck. But you don't think it helped...hmmm, maybe it won't help the neuropathy I have much either. On the other hand, the other symptoms I have that are not related to PN are debilitating too.

I suppose cellcept is an option that could be combined with IVIG. That has its downsides too.

I keep thinking at some point, something will force my hand.
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