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Old 01-03-2010, 06:42 PM #10
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cyclelops cyclelops is offline
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Join Date: May 2007
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cyclelops cyclelops is offline
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Join Date: May 2007
Posts: 2,049
15 yr Member
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Mere, insurance covers it, but it is a constant battle. The docs, both rheumie and neuro want to maintain me on it. The insurance co. denied me over the summer and I had a horrible time, I got worse.

I am due for my infusion tomorrow....I am feeling really hideous right now, so let's see if I improve over this week.

In general, I think it has done fairly well for my neuropathy, as most of my slides occured during times when I was not being infused. My ANA is running high at >1280, speckled and nucleolar.

Dysatuonomia is still an issue, but I went off a lot of pain meds. I am still in pain, but I wanted to find my baseline.
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