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By introduction, I am a 47 year old female that has been ill with symptoms mirroring those of neuropathy for almost 20 years after suffering from a monoclonal viral pneumonia. It has waxed and wained over the years. During this 20 year time, I have been diagnosed with tachycardia, migraine, fibromyalgia, (autoimmune) spondylarthropathy and more recently, after a bad attack for which I was hospitalized, gastroparesis. The neuropathy symptoms have pretty much been ignored.
I continue to have worsening recurrences of autonomic instability and have had severe pain in my left arm that has left me with tingling in my hand that will not go away. I also have developed periodic pain in my lower leg and shooting pain under my toes. Every time I turn around, something new and uncomfortable is happening to my body. I found a good neurologist locally and he did find some problems in the neurological exam (not sure what) and the conduction study was slightly abnormal in the leg. The EMG was normal. He is doing a skin biopsy next Tuesday and I have a list of bloodwork to be done. My neurologist suggested Alpha Lipoic Acid, 600 mg/day. I am usually able to push-on and deal but it is getting very difficult to do this lately... I ended my 25 year career a year and half ago and can no longer work. Just hoping to find some support now as I am so fearful that this will not ever improve and too much time has passed to treat this properly... Thank you for reading... Mere |
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