Dewey there are plateaus and valleys involved in the healing process that has been reported by people on PN boards. In other words there are periods of time when symptoms get worse again then resume getting better. I dont know what your history is but it is only over a period of time you can tell which direction you are going in. If you have small fiber neuropathy you would need a skin biopsy to really tell what is going on with you. An emg would not be able to detect the damage to the small fibers. If im telling you something you already know i apologize.

I knew a few people from the Belen and Moriarity areas back in the mid seventies. They must be grandparents by now..ha!

Echoes is spot on with what can happen in the healing process, you can get times of lessor symptoms, then what feels like flaring of symptoms follows on, there is no set patterns either but lessor symptoms at differant times sounds promising to me, I hope it is the healing process your experiencing.

Well, I'm still encouraged by this news of Dewey's. I'll just bet he'll come around in the long run. That's what I'm expecting to report one day soon. I'm taking my cocktail, much of which Mrs. D has recommended on her posts, and others have helped as well. So I'm looking forward to a positive outcome. I haven't started exercising yet because it's too cold outside, but maybe I should do floor exercises until I can walk outside, or fast walking is what I really want to do. And that's for stimulating my feet, plus to lose this extra 10 lbs that the Neurontin and Lyrica have put on me. I just can't seem to get it off just watching what I eat. Any suggestions for anything else that might help? I want off of the Lyrica so, so bad, and that's why I'm praying that these supplements will work. I want to be healed, not just mask the problem. I hope to have blood work done in March, and I'm asking my doctor to check me for a B12 deficiency. Can anyone point me towards anything else I might ask him?

Thanks to all for sharing. It really does help us who are new to this, in much pain, and are still trying to find our way to some positive results. You all rock!

KK

If you are being tested while already taking B12, you may not show a deficiency.

Testing is best done when you haven't started B12 yet.

It can show that you are absorbing your supplement correctly, however. Most B12 serum tests to not go above 2000 so your real value if high cannot be measured accurately.

I'm just beginning, Mrs. D, so would you recommend I stop and wait until I go back, which would be March 11? I'd really love to know what the root cause is, and from reading all the posts regarding it, I need to know to get to the bottom of it so I'll know how to treat it better.

That is a hard question. If you are 50 or above, or take acid blocking drugs, you are at risk for low B12 just for those 2 reasons. If you are young, then the only big cause is lack of intrinsic factor (autoimmune or genetic), or long standing vegan lifestyle, or use of acid blocking drugs or metformin.

Its your decision in the end.

Okay, so my odds are pretty high, then. I'm 52, and I don't know what acid-blocking drugs are, but I do take Synthroid for hypothyroidism; my hormones, Primpro; and Restoril for when I can't sleep. I take a fish oil pill every day.

And I know you can't make the decision for me, but I do value your opinion. I'm just so anxious to see if I'll get results from them, but I've waited this long, so I guess another month won't kill me. I don't know what to do.