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Old 03-05-2010, 11:09 PM #1
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Originally Posted by daniella View Post
Hi I am sorry that you are facing this but am glad you found a good neuro. That is a ray of hope when I do. I am on neurontin too and it can time to build up to the right dose for pain. As for long waits when I have them I call every day and one place I did it 2 times a day. I have gotten in months in advance.

The new doctor that I see told me that he would see me in 5 weeks, but if I had any problems whatsoever to call and they would get me in right away. Everyone in the office (which is small) was super nice and made me feel welcome. He even took me around and showed me everything there. What I liked the most was him saying that he would treat me the same way he would treat his family. I got more out one initial visit than i have with the other neuro office where I see a PA. There I can't get through to talk to a live person and when I do they are rude and i get the feeling pretty tired of my phone calls.

Should I be thinking about discontinuing Nortriptyline since I am on Neurontin, plus my psychiatrist put me on Celexa?
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Old 02-21-2012, 01:02 PM #2
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The new doctor that I see told me that he would see me in 5 weeks, but if I had any problems whatsoever to call and they would get me in right away. Everyone in the office (which is small) was super nice and made me feel welcome. He even took me around and showed me everything there. What I liked the most was him saying that he would treat me the same way he would treat his family. I got more out one initial visit than i have with the other neuro office where I see a PA. There I can't get through to talk to a live person and when I do they are rude and i get the feeling pretty tired of my phone calls.

Should I be thinking about discontinuing Nortriptyline since I am on Neurontin, plus my psychiatrist put me on Celexa?
So, it's been 2 years since my dx. Since then, I had another episode last year. I got weak in the knees and spent 2 days in the hospital not being able to walk. All of my tests came back normal. It has been a year, and I had stopped going to the neurologist because after my second episode he basically told me this was nothing but stress-related and he could do nothing else for me. He sent me to a therapist and I went to counseling for several months. I recently started experiencing some numbness and tingling. At this point I am at complete loss with that exactly has been happening. After all of the testing, pain and other things, I ended up being told that this was psychosomatic. Really? For this long?
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Old 02-21-2012, 03:01 PM #3
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Sorry he said it was stress. I would just find another doctor. With my CFS and Dysautonomia, I have been to many doctors. Integrative MD's are the only doctors that have ever helped me. They can help with supplements for many things to actually help the body heal. I am so sorry you felt badly again.

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