Thank you for welcoming me into your threads. I am afraid that maybe I stopped the IVIG too soon... and I wonder if it was working based on the fact that I have been feeling terrible lately. Yesterday, my toes and feet were totally numb, a new one for me. I changed anti-inflammatories, and I am pretty sure that is what is causing that.

I am supposed to see a new rheumy for a second opionion on plasmophoresis. My appointment had to be pushed back from March 8th to April 8th because I had to make an appointment for my daughter at Children's Hospital to see a pediatric neurologist. She has leg pain as well, and her Sed Rate was 31, too high for a six year old. Maybe we will help diagnose each other.

I am still scared, and I feel like I am not doing anything. My next appointment isn't until March 26th. Until then, I am just taking all my meds.