Here's where I struggle too... I have an appointment on March 26th with the head of Immunology at University of Michigan (funny because I went to MSU!). Anyway, should I be seeing a neurologist there instead?

Thanks again. I reread these now that I have more time, and there is some great information. I appreciate the explanation between the antibodies, and also the comment that SFN can cause wide-spread pain, not just in the hands and feet.

I am scared to try any immunosuppresent drugs, are those like chemo?

And last, yes, "I wasn't impressed" either with that second doc. I was so excited to see her too. I wonder if she just didn't want to take on a basket case? She was soooo nice in the hospital when she begged me to come see her!