It is true, there is no cure, yet.
But there is a lot you can do, if you have the right doctors, and treatment.
If you are prepared to go out of your way in a search for the right neurologist who specializes in PN.... not any average neuro, or even a head of a dept that does not specialize in neuropathies.

You must find a PN specialist.
That's 1/2 the battle.

Then you can get the most up to date diagnoses & treatment and a regimen of meds that will let you live a 'normal' life.
Some compromises will have to be made. Possible lifestyle changes will have to be made. Medications will have to be taken.
But you can live a life without fear and desperation ..... if you get the right doctors.