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Old 02-23-2010, 05:37 AM #1
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Please...

Never accept results of B12 from doctors as "fine" or "normal".

Interpretation of the results is still being done based on old lab ranges in many instances. You should have at least 400, and preferrably 500 or above to be "normal". Even then borderline patients could safely still take supplements.

Here is an article explaining:
http://www.aafp.org/afp/2003/0301/p979.html

Patients can show neurological symptoms long before anemia develops with low B12.
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Old 02-23-2010, 10:23 PM #2
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I brought some B12 today from a naturapath at the health food store, he seemed to know what I was talking about. I have a two month supply so I will see how they go. I will also look into getting the vitiams and minerals that my doctor suggested.
thanks again for your help

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Old 05-11-2010, 08:48 AM #3
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Hi! I am a newbie. I also have been dx small fibre neuropathy. I suffer like you with the night pain and feet and leg pain,and like you i am experiencing not quite tingling of the scalp but what seems to feel like severe contractions! I am so puzzled about this and can only presume it is a form of neuropathy. I also suffer from Parkinson's and acromegaly. I find life a bit of a bother and struggle but i fight the good fight (with the odd meltdown!!)
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Old 05-11-2010, 09:21 AM #4
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Just keep on keeping on, Smruff, and never ever give up. I've had PN for 21 years and am now 78 years old and I'm still getting about pretty good.
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Old 05-12-2010, 12:05 AM #5
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Hi Smurff, You have come to the right place Smurff, everyone is so friendly here, there is a new sub forum which has plenty of information which will help you. Hope you are feeling better soon.
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Old 05-12-2010, 12:49 AM #6
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Originally Posted by lesley21 View Post
Hi Smurff, You have come to the right place Smurff, everyone is so friendly here, there is a new sub forum which has plenty of information which will help you. Hope you are feeling better soon.

By the way i am from Oz too..live in Perth !
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Old 05-12-2010, 06:04 AM #7
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By the way i am from Oz too..live in Perth !
Hi again Smurff, good to talk to a fellow Aussie. Hope you find out the information you need to know. Neuro talk has defently helped me, you don't feel so alone.
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