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-   -   Anyone with balance issues? (https://www.neurotalk.org/peripheral-neuropathy/115266-balance-issues.html)

dahlek 02-24-2010 09:29 PM

I can't help but chuckle when the doc asks me to...
 
close my eyes? I simply and clearly state: YOU better be spotting ME! or I will fall. And I've scared them silly a couple of times... Nuff said... Other than BIG TIME TILT!
Thing IS..I can't suggest pt exercises that mite help anyone, I could only say what's helped me. BEST yet [but harder to get at], is to find a Therapist who IS REALLY FAMILIAR in dealing with balance issues, such as ours...the best sources are those who've worked w/MS patients as they to have demeyelination, but in the brain, not outside the brain such as we can experience. These days, especially since we 'can't' get around as we'd like? Going and interviewing therapists is not an easy or optional thing to do? It can and IS very frustrating to deal with therapists who are 'treating' you only half-way or worse half a**ed. At $100.-150. a pop-per 'session' to any insurance co? It behooves and benefits us to try and check things out, as best we can and go with that 'gut feeling'. It should be easy, yet at the same time? It can become soo hard! I hate the 'hard part' immensely. Interestingly? I've found that PTherapists who'd worked with 'war disabled' seem to be the most curious and best to help a body work around their problems and thus overcome some and beat others. I hope you find such a wise one and soon! Hugs and hope! :hug: - j

Feel the Burn 02-25-2010 05:37 PM

My balance has gotten worse over the past year,, of course the doctors differ,, but I know my body, and I know it wasent this bad two years ago,, I had a horrible neuro for a while,, he did two EMG;s on me and said you donthave any neuropathy,, of course I knew he was worng,, and eventually had a biopsy which showed it,, I sometimes wonder how much I lost while the first neuro messed around with his EMG (studys),,

Mere 02-25-2010 09:59 PM

LOL, no kidding! I am also "challenged" at navigating direction. Do you think they are related!? (Just kidding about it being related)...

Mere

peppermintpatty 02-28-2010 01:41 AM

I also have balance issues with mine. I've had two different physical therapists who have worked on balance exercises with me.

My home health therapist stood me at our corner kitchen counter, slightly forward, then would 'push' me from different angles and the goal was for me to maintain my balance (all while safely strapped to the gait belt, of course).

My current PT does something similar, using my walker. They are slight nudges at best, but like you, I've had many falls and they're just taking their time. I'm still confined to the wheelchair at this point, but getting there slowly.

sabimax 03-01-2010 12:12 AM

PT for it, yoga can be helpful I think... I can concentrate and balance well during yoga.. but then another time I can just fall over due to balance ..what joy..hugss and good luck, sarah

echoes long ago 03-01-2010 05:20 PM

i tried some mild yoga and kept falling over. It was very strenuous to try to stay balanced but not in a good way that was going to lead to better balance in my opinion but rather to injury.

antonina 03-01-2010 06:28 PM

Quote:

Originally Posted by echoes long ago (Post 627637)
i tried some mild yoga and kept falling over. It was very strenuous to try to stay balanced but not in a good way that was going to lead to better balance in my opinion but rather to injury.

My legs are so weak that I cannot raise myself from a lying down on the floor position EVER! Yoga would not be an option for me. I fell a few nights ago and if my daughter hadn't been on her way home, I would have had to call 911.
I was like that life alert woman who shouts "I've fallen and I can't get up."

I am seriously looking into getting one of those gizmos you wear around your neck...this imbalance stuff may well kill me even though I survived two bouts with cancer.

I admire your courage trying yoga. If I fall over one more time, I'm going to take to my bed for good.

dahlek 03-01-2010 08:30 PM

Life 'challenging' Is what I call it...
 
ME? GOING ON THE FLOOR? NO WAY THESE DAYS! NO HOW EITHER'
If it weren't so big? I'd consider an Irish Wolf Hound to be my 'support animal'...tho I suspect that breed has many structural problems as well? At least It'd be TALL enuf to keep me 'level' and upright?
:D OK Stupid grin... but apt.
Hugs to all - j

antonina 03-01-2010 09:28 PM

Maybe there's a way to learn how to fall which can minimize damage, especially fractures, etc. I'm sure performers w/ the cirque de soleil must have had this training. I'm going to look into this.:Trapeze 2:

JoanB 03-02-2010 11:51 AM

Do all of you have a loss of balance constantly? For example, most of the time if you tried to push me over, I could resist and not fall over, but sometimes my "gyroscope" goes kerflooey without warning when I'm walking and I veer off to the right. I did it last night getting out of the car and almost fell over one of those dirty snow mountains we still have from the blizzard.

Do you think they're two diffferent things or that what I have is a precursor to having no balance all the time?


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