Hi out there. Diagnosed with PN about five months ago.
Male 54, started waking up with tingling/numbish right hand at night. Followed by gradual numbness in toes in both feet, then soles of feet. Occasional random shooting pains mostly in feet but also all over the body, (not nearly as much pain as some, I know) Pains seem to be increasing. Feet tend to get sore when I stand or walk for long periods. Feet feel spongy and mushy. Putting them up helps a bit. A bit of a loss in manual dexterity. Hands hurt when gripping things tightly.
Am embarrassed to mention this--but I've lost some sensation in the penis. Everything still works, but definite loss of sensation. Typical to PN?
No diabetes, blood tests normal so far. EMG shows mild damage to feet and arms. Wonder if anyone out there with similar symptoms has found a cause or possible cure. Wondering if there is a normal arc of progression of worsening symptoms. Saw neurologist twice. He was vague on what to expect in future. Are shooting pains always followed by nerve damage in that area? Thanks, IG