My heart truly goes out to you...... BUT! You have indeed found a WONDERFUL place for the knowledge and encouragement you are seeking for yourself and your husband....

There are so many very knowledged folks here who will give you specifics or ideas of what may possibly be his 'culprit'.......otherwise, you will soon find out that this mysterious condition is basically a process of elimination.......
As the others have already suggested, it's imperative that you have a 'handle' on what the Dr's are or are NOT doing for your husband....
One VERY convenient way is via the 'Liza Jane Spread Sheets'...... you will find this and other very important info at the top of this page in the special section called the 'Stickies'.....
By gathering this information, you will be much less likely to become completely overwhelmed by everything.

Each person here who has battled PN will have certain little nuggets of interest....and as you get to know the others, you will soon realize what a wonderful 'family' this forum really is!

And speaking of socks......i wear mine inside out..... because the inside of socks feel like sandpaper to my feet ......
Howz THAT for a kooky 'nugget' ?!

It's good to have you, Monika
We're all here for each other!

Do you know what antibiotics your husband took?

Some of them cause neuropathy. Flagyl and fluoroquinolones like Cipro, Levaquin and Avelox cause PN.

Does he use a statin for cholesterol control?

I do not see papers on PubMed linking lisinopril to PN. In fact there are papers that show the reverse, that PN improves with lisinopril. Many are animal studies but there are some on humans with diabetic neuropathy.

Supplements like B12 and Vit D can be tested for before starting with them. That would give you an idea if you need them at all. People who are not deficient typically do not respond to them when taken extra.

Everyone else has given such good advice about resources for your husband, I thought I would offer something that might be helpful for you as your husband's partner. You are, after all, living with his PN as well.

There are two great articles you can find at this website:

Pain Treatment Topics

About midway down the page you will find the heading: Chronic & Intractable Pain. The two articles to look for are: Surviving a Loved One's Chronic Pain and Intractable Pain Patient's Handbook for Survival

You have found a great place for support and knowledge, and we are glad to have you here.

Hi I am sorry abour your husband. Has he had complete bloodwork looking for auto immune etc,mris,emg/nc? I agree about bring the paper? Before the apt a list of ?'s. Some ?'s I ask are about other meds,procedures,testing. Also bring any records you have. I keep a binder of every test result and apt I have been to for the next doc. As for socks i too turn mine inside out and stretch them way out. I was using a medped kind that was non binding ankle one. I could open a sock shop with all the socks I have bought but can't wear. FOr me supportive walking shoes are key too. As for the meds and your husband being out of it I would tell this doc about that as well. Sometimes for me my docs have started me on too high of a dose. In time though he may adjust to this dose but it is a good idea to tell the doc. Sorry I could not be more help and hope your husband get some answers.

I think he took the cipro yikes! thanks for that information...

Don't despair! Getting down to the meds [aka CIPRO?] Why was he on it, for the rash? I truly doubt that it would be used for that unless other factors [such as bloodwork] showed something else... I say this because it was a long bout of pneumonia treated on 3 different anti-b's [one was CIPRO] that likely caused my own immune related neuropathy. 'Bugs' these days don't get treated easily as they used to when I was a kid? But then there weren't many options either. And, I like to think I'm not THAT old.
As for trying to post and having it go 'POOF!'? Happens to all of us... Very exhausting tho, isn't it?
OK go and ask for copies of tests and medical records, in some states it's easy, you go to the office, fill out a form and they get back to you and you pay $$ per copy and go on your way. Other states? Apparently you need to get the doc's release for copies of the records. Where I live it's easy, either go in person and fill out form, or go pick up after asking for a form and sending it filled out back to them. But, you usually have to present ID to show that you are legally able to get the copies. Power of Attorney or your husband present w/id should do the trick then.
Hang in there, keep asking questions and don't be shy! We can share what we've learned and likely even learn more by those questions.
The more we know, the better armed we can be to deal with this all! And it does take 'dealing with'! - 's - j

Well it is just a few hours away, the appt. Sorry if I seem a little over board. My mom had very strange symptoms in 1976 and for nine months the doctors were not sure what it was. Then she died in November of 1976 of a brain tumor. They did a cat scan saw something about a week before she died but they did not know exactly what it was. I was only 14 at the time and she died very suddenly, so it was quite a shock to me and traumatic to say the least. So now with this happening to my husband, I am extremely nervous and I do not always trust what the doctor's think it is, since I lost my mom because they misdiagnosed her condition. I do not want to make the doctor mad by being too demanding. Huh boy. I can feel the tear well up...