I wanted to let you all know that I have made a lot of progress the last few weeks. Mayo sent me home with a prescription for 4 weeks of physical therapy. While I can't say it's done anything at all for the sitting pain in the left hip, it has given me some strength, balance and much needed confidence that I'm still a person. I'm driving now. I still haven't ventured out of town by myself and I am careful to let my husband know where I am and carry my cell phone with me. But I feel that I can drive anywhere in our little city. I even put gas in my car today.

Yesterday I got up, got dressed and went to the grocery store. Walmart is a biggggg place. Pharmacy (where I needed things) and the dairy counter (where I needed things) seemed 40 miles apart. But I did my grocery shopping, loaded it all in the car and drove home just like a real person. You know...one of the most demoralizing aspects of this insidious disease is what it does to you as a person. I've spent a year and a half in my pj's, and a robe. Nothing done to my hair but a haircut every now and then. No makeup, no nothing. And could have cared less. But every now and then I'd look in a mirror and think, who is that person?

I came home from Mayo with hope for a better quality of life. This week I walked into my beauty shop and said dye my hair back to the copper red it had been for the last 20 years. I wanted me back. I wanted the familiar spicy hair on my head. So now the Redhead's back!! She's spicy too to go with the hair and she also talks a lot.

Yes Mayo was worth it. I've still got lots of aches, still got the pain in my how do I say it?....b*tt, still got Sjogrens, and still got neuropathy. But I've got some of my life back. Hope you guys can put up with me.

Billye

You go girl!

Thats just fantastic Billye, i couldn't believe what i was reading, i had to read your post again to make sure before it really sunk in properly, i am really happy for you

Look out Greenville... The woman will have her cowboy boots or dancing shoes on next... Wow!!!

Cathie

YIPPEE!

Cause for hope for all of us! HUGS!!!!!!!!!!!!!!!!! - j

With sunglasses and behind the wheel of a convertible, of course.

This is the best news yet.





And wouldn’t it be cool if this is you someday!!!!!

All the best.
Love, Melody

Next it'll be with a 'tall dark & handsome' on your arm
Great !!
(Ya gotta post a pix!!)

Getting your stamina back. That is just great.

Now I will have a mentor to follow!

First on MY list is to ditch this crappy job that I got sucked into!
The first step is in Feb.

Second is trial of my new light visor, which is in transit for here.
After much looking around, I decided on it to improve my winter doldrums.
I really hate SSRI drugs, and don't want to try them or expose myself to them.
And besides I am just fine when it is warm and sunny out. So this visor
experiment has promise for me.

But it is great to read that you, Billye are feeling better! That is a big gift
for me this week!

Hey you guys,
Thanks for all the support. Bob, I've got my tall dark and handsome already. Been married to him for a lonnnng time.

I'm not posting a picture unless I can find one of Rita Hayworth.

Mrs. D, I'm so glad you're getting rid of that terrible job. It has turned out to be more than you expected, I know. I've read your posts and thought Geez, they're working her too hard. The light visor is something new I haven't heard of. I understand the light therapy but I've never seen this. Can you post a link?

Billye