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Old 05-01-2010, 06:11 AM #5
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darlindeb25 darlindeb25 is offline
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darlindeb25 darlindeb25 is offline
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Join Date: Aug 2006
Posts: 744
15 yr Member
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my limited understanding of neuropathy, from my Doc, and an online medical encyclopedia called MEdlinePlus, is that it is a permanent, incurable, progressive condition ... so by my understanding, once you have it, you can never go back to NOT having it ... and it is only a matter of managing the symptoms and the pain, as far as treatment, and trying to prevent it from getting a lot worse ... but that it does tend to always get worse over time, and not better ... though from what I've read here so far, it seems like some are saying that may not always be the case ...
This is true in a sense. You will probably always have it, yet sometimes it can be controled, and yes,the alcohol should go. Continuing to drink is like feeding the monster. When you have any condition/disease, you have to do all you can to stop what caused the issue, then you work forward. My snesory neuropathy was caused by gluten. Now, if I continued to eat gluten, not only would my neuropathy get worse, so would everything else. The gluten doesn't just attack the nerves, it attacks everything in my body. I have never beena drinker, but I can't imagine that giving up alcohol could be any more difficult than giving up all the foods I have lost to intolerance's. I know alcohol and nicotine are addictions, but, for a gluten intolerant/celiac, gluten is an addition too...we want it, our bodies think they need it, we crave it so much. People can live without alcohol and nicotine, but you can not live without food. I think first and foremost, you need to stop the drinking, a little can hurt.

It is a matter of managing the symptoms and the pain. I take 5000mcg daily of B12, and it has significantly slowed the progression. For now, I do not take anything for pain, and hopefully can continue on this path for some time. Meds are scary for a gluten intolerant, so many contain low levels of gluten.

Stick with this group and you will get suggestions on how best to move forward. Good luck.
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We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!
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