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Originally Posted by Rrae
I'm so glad you've already been getting these responses! Sometimes weekends can slow up a bit here and I was afraid you'd think no one cares......  |
... well, I think it was the salacious and catchy title I used to reel 'em in ... old show-biz trick ... then no matter how tired, boring, seen-it-a-million-times the material is, you hope the customer will be too enbarrassed ro lazy, to ask for their fifty cents back ...
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I have such a 'sneaking suspicion' that if you measure these early posts of yours to say..... a few months from now.....you're gonna be absolutely amazed.
Not sure what I mean by that.......just positive 'vibes' I guess 
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Im not sure Im sure what you meant either ... but I'll take all the + vibes I can get
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The knee thing. That's probably neither here nor there...the reason I asked is because my PN battle started out 5 yrs ago with piercing knee pain......so instinctively all my attention and medical testing centered around thinking there was something 'wrong' with my knees. My knees are fine. It's the nerves stemming from my lumbar plexus that were referring the pain there and ultimately consuming both the entire legs.
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... see, I dont even know a lumbar plexus from a lumber jack, Im such a dummy ... when you say "consuming both the entire legs", do you "jsut" mean that the entirety of both legs are in pain? Or have you lsot the use of them altogether, I sure hope not ... but in reading about the worst outcomes or progression of PN, it mentions loss of muscle control and mobility ...
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And being hyPOthyroid played a factor in several things which contributed to my battle. I'm female, and at our age.....well.....  varying doctors are naturally gonna 'assume' our 'ouches' are 'in our heads' or relating to menopausal cr@p......
......I'm not even sure if you are male or female (how embarrassing)  ,
some of what I'm sharing may or may not interest you in the least.
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... no reason for embarrassment, but I'm a rootin, tootin Texas cow-Boy, Ma'am (half Cow, half Boy, that is
)... these genderneutral screennames sure can leave one in a quandary about such things, at times ... I have at least one female freind who ocasionaly starts to tell me (in context of talking about her overall health, or issues thereof) about some of her "menopausal cr@p", and I'm jsut like "uh-huh ... oh ... OK ... well, sorry ... " ... what else can I say?
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At first I was labeled Fibromyalgia..... ? ...... and to be honest (this is just ME talking tho) the "Neurologist" experience ended up being my most expensive and regretted move....!  Point being, maybe don't pin all your hope on thinking a Neuro is gonna be your saving grace.
As far as I'm concerned several folks here have been MUCH more helpful than some of the 'specialty Drs'........ Glenntaj & MrsD (and others) IMO have a better understanding than all the Drs put together that I went to!
Of course, no one here tries to 'play doctor'...... but what I'm saying is that I went in circles and got nowhere.
Before you DO seek out a certain doctor make sure UP FRONT they are willing to commit to knowing/understanding PN and if not, hopefully they will be honest in saying they aren't that well-versed in PN and refer you elsewhere.
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... well, I appreciate the input and advice, I'm jsut trying to get my bearings here, and it seems like a bit of a minefield at times ... if you dont step on a mine, you fall in a quicksand, and then there are the R.O.U.S. to worry about ... (some think they don't exist) ... maybe a neurologist wont do me much good, and Im sure one who doesnt understnad PN wont, but I'm thinking along the lines that if I do have PN (and I seem to have it), I might be better off gravitating away from the foot specialist (the only doctor who is currently treating em ro "seeing" me), and towards someone who maybe can deal better with the neuropathy and with my health issues as a whole, including the vaitamin and nutritional deficeincies, etc ... I mean, my foot Doc can prescribe Lyrica, neurontin, or anything else I could talk him into, but he gets paid to think about feet all day, not "the whole person" (maybe I am kidding myself, that there are actualy doctors out there, who do this?)
eh ... dont worry, I dont beat myself up past teh point, wear it isnt fun anymore
... the "karma / fate" point of view makes for an easy rationalization too, I supose, for saying This si the rotten hand I was dealt, I should just give up, drink myself to death, etc ...
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There's a real good discussion down a ways on the threads regarding alcohol-related neuropathy......people open up about other habits as well.
And that is just a more recent discussion. Using the 'search' feature at the top of the page is a very useful tool.....type in key words and you'll get a bunch of posts from discussions in the past.....
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I had read some fo that thread befour I posted here, and I have read all of it now ... I did think about "telling my story" there as my first post in the forum, but I kind of wanted to avoid having alcohol use being the main focus of discussion for replies or comments ... and not "jsut" bcos of wanting to avoid dealing with the issue at all, but bocs I want to get a grounding in or understading of PN, period and in general, FIRST .. I understand that the alcohol issue is not something I can jsut ignore in this context, (at least, not without consequences), but I need to get my head around the whole idea of having PN, whatever the causes and /or exacerbating factors ... what it really is, what it really means for me going forward, what my choices and options are for treating and managing the condition, INCLUDING "managing" or stopping my alcohol intake (and other habits) ... does this make any sense to anybody, or does it sound like I am jsut avoiding ... bcos I will honestly admit, the alcohol part of it, is not going to be easy for me, and I am not sure I will be "ready, willing and able" at this point, to give it up completely ... not bcos I cant, but bcos I dont WANT to ... and I understand, I think, what a serious dilemma this potentialy is for me, I'm not oblivious to that or "blowing it off" ... maybe I jsut need soem time to get my head around it, maybe it will take the symptoms and the pain getting worse over time, to knock some sense into my thick head, I dunno ... but Im sure I will be posting on that thread or on that subject, if anybody has the patience or tolearance to bear with me ...
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Oh yeah, you mentioned something regarding obtaining your medical records....YES!!! GET THEM! They are YOURS and you should have copies of what has or has not been done/tested.
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... I will make it so, my freind ...
05-01-2010, 11:08 PM
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