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Old 01-28-2007, 12:20 PM #7
dahlek dahlek is offline
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Join Date: Aug 2006
Location: metro DC suburbs
Posts: 2,576
15 yr Member
dahlek dahlek is offline
Magnate
 
Join Date: Aug 2006
Location: metro DC suburbs
Posts: 2,576
15 yr Member
Default Some docs...will INSIST...

It's alcoholic neuropathy if You have had one drink a month! I had a neuro like that! He's no longer my neuro and he INSISTED I was drinking, and ingored my pleas to change meds and concerns about progression similar to yours--pn marching UP the body..to stop-where? the brain?

I changed neuros and got second second opinons...turned out that extended pneumonia for weeks prior the PN onset had set off an auto-immune reaction called CIDP or auto-i neuropathy.... There are treatments. So, I ask, did you have a long drawn out cold, flu or the like a bit before?

I did not have access at the time to LizaJane's sheets - but all the tests I'd had were on them, and, in the right sort of 'progression' to diagnose my problem. With treatment, the progression can be stopped or seriously slowed, and some sort of life can be had...

GO For it?

Super good thoughts for finding the right doc! It can really make all the difference- j
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