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#1 | ||
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Magnate
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http://en.wikipedia.org/wiki/Baclofen
I don't recall many folks taking it for PN tho? As for it taking a 'while'? Even Neurontin and Lyrica take about 4-6 weeks to actually work, providing there are no side effects. Look up the particular drug and dose + prescribing information and read that...its listed under 'usual or common side effects'? or towards the end of the whole thing under 'less common effects reported'. As for loss of control? A thing to consider is how she's living right now? Mostly sedentary? Pressing on some nerves and not others? Any tests that might have been done on her, such as MRI's or the like? Can also pinch a fussy nerve enough to make it that unhappy! I know. That's happened to me w/the resulting undesirable s/e! For me, it's taken almost a year to get back to normal of sorts. As for the pain? Has she been tested for either gallstones or kidney stones? I've the former and I'm often feeling as if I've been hit w/a 2"x4"! Docs don't know 'what to do w/me' because I've so many other fun things going on! To be honest? Sometimes the 'cures' are worse than the problems! As for the incontinence due to the med? Call the doc! See/ASK what alternatives there are? I'm sure your mother is a 'lady' and this problem is one of the more distressing ones encountered than many others! [My M-I-L went thru the same problems] Just be glad that your mom is alive & sharp at 87! I am much her junior and having gone thru some of this issue? I have to say, it's in the top five of the most distressing aspects one has to face! Please give her a ![]() Kidney infections are [I now recall?] often treated w/baclofen, and yes they take a while to kick in as meds! The faster acting meds for such infections? Also have s/e's that are worse than those cures tho. Baclofen If I recall correctly, is slower? But effective w/fewer long term s/e's. You need a ![]() |
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#2 | |||||||||
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Hi dahlek, and thanks for the quick response!
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And thanks for all of your thoughts!
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PPMS Rx 2013, symptoms since 2000 |
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#3 | |||
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Wisest Elder Ever
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Baclofen is a strange drug. Some people cannot tolerate it.
It is hard to discontinue off of. http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1121408/ I would really consider using a magnesium supplement. This can relax muscles considerably. And low magnesium may be the CAUSE of muscle spasms! One has to have good renal function to use magnesium supplements however. But this can be considered and may work. If your mother uses diuretics for blood pressure, these drugs deplete magnesium! Also diabetics become low and the drugs used for reducing acid in the stomach, diminish magnesium absorption from food. Magnesium is used by OBs for severe Braxton Hicks contractions during later pregnancy for women. It works very well. Estimates are that about 70% of Americans do not get the RDA of magnesium any more from diet. I have a magnesium thread here: http://neurotalk.psychcentral.com/thread1138.html You want to make sure your mother is not having a Cauda Equina event from spinal stenosis. This leads to incontinence too and severe back pain. It is considered a surgical emergency. http://emedicine.medscape.com/article/791613-overview
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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#4 | |||
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Member
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Thanks mrsD. She already does supplement with magnesium, but I'm not sure of the dose. I will find out.
For this morning, I just want to see if I can get her some short-term relief from her suffering. That takes priority over the bladder problem, which I still think is caused by the drug, given the timing. I will ask about the Cauda Equina Syndrome, but since it's certain that this conversation will be second-hand, there's no telling when I'll get any response for reconsideration of the DX. She does have stenosis, so you may be onto something. I have been acting as her advocate with the MDs for a while now, and have my work cut out for me this morning. Gotta go, but I'll let you know what happens.
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PPMS Rx 2013, symptoms since 2000 |
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"Thanks for this!" says: | mrsD (05-07-2010) |
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#5 | |||
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Magnate
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I took baclofen and it worked immediately.
I am not on it now, but am pondering if it may help, but, honestly, it knocked me for a loop. It was pretty strong, more so than valium, which is a good muscle relaxant.
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Some days are not so good . . Others not so bad: . |
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"Thanks for this!" says: | JoanB (05-07-2010) |
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#6 | |||
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Thanks again, cy. I did get to convince her pain doc's nurse that it wasn't working for my mom and got another type of muscle relaxer, which mom says might be working a little better. I can't recall the name...this week has been such a blur for me that once my brother took over for the weekend, I left it in his hands. He's staying there with her (brother
![]() This morning I woke up, and all the mom stuff and PN and mealy bugs on all my houseplants and my unemployed @$$ and megagigundo oil slick in the Gulf (not necessarily listed in order of importance) fell in on me and I started to do what I usually do: cry. But then I stopped mid-sob and got mad. Really mad. And I went outside and started throwing rocks. And then I went to Lowe's. And when I got home, I threw more rocks. And I then I did some less dramatic (boring), but essential (behind-the-scene) things and then threw more rocks. And this is what happened: In case you can't tell, it's a waterfall with a bed of impatiens at the base in our tiny, city front-yard. Oh, and a blue spotlight on a timer. Now I hurt more than I have in I-can't-remember, but it was worth it. I like the new, improved, Mad Joan. Where did I put my electric chainsaw?
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PPMS Rx 2013, symptoms since 2000 |
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#7 | ||
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Magnate
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Now explain more? There have been times, it seemed like a solution? But it really isn't? Ask any veteran w/phantom pain syndrome! Then when the 'problem' is gone? The nerves simply don't seem to KNOW THAT! Easily nixed concept in my HMO.
Having gone thru this w/ a similar aged relative? How's she in the constipation dept? IS THAT what's really causeing the 'lady' lots of concerns? Rightfully so, but, there are a slew of medical and dietary options that can help in the quarter.. so talk to your docs AND your nurses! Nurses in senior facilities know about these things! AND can do good things w/diets that docs don't have to 'prescribe' meds for! And older ladies, are less likely to complain...except to you! Just be alert to the word "THEM" or 'they are out to do...' I'd always ask WHO 'THEY' Are and she'd just go...YOU KNOW!!!!! That happens at that age? Frustrating, yet, communicating w/caretakers about such 'attitude'? Can help avoid problems in the future... Your waterfall is perfect in my eyes! I bet the sound is so soothing! And yes, life beats on us from all directions? But we do survive! Better so for seeking advice from those here wiser than I am! [Actually I'm kind of jealous of that waterfall? ;}] Keep faith and hope and a sense of some of the 'sillies' you will see during this course of your life...and, beleive me? There are a heap of silly things going on! Hugs ![]() ![]() |
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