Reply
 
Thread Tools Display Modes
Old 05-09-2010, 12:37 PM #1
echoes long ago's Avatar
echoes long ago echoes long ago is offline
Senior Member
 
Join Date: May 2008
Location: new york
Posts: 1,589
15 yr Member
echoes long ago echoes long ago is offline
Senior Member
echoes long ago's Avatar
 
Join Date: May 2008
Location: new york
Posts: 1,589
15 yr Member
Default

in the old days i read that people used to relieve their frustrations or tensions by throwing plates in the woods against trees while screaming at the top of their lungs . of course this is environmentally destructive so maybe throwing stones in the ocean or river or lake while screaming might help. or perhaps throwing eggs or tomatos or something like that in the woods that animals would eat after might work. finding an area where no one would hear you so as not to alarm anyone or getting yourself committed my involve a bit of looking for these days. ive never done it myself but it sounds good to me at times.
echoes long ago is offline   Reply With QuoteReply With Quote
Old 05-10-2010, 07:12 AM #2
JoanB's Avatar
JoanB JoanB is offline
Member
 
Join Date: Sep 2009
Location: Pittsburgh
Posts: 739
15 yr Member
JoanB JoanB is offline
Member
JoanB's Avatar
 
Join Date: Sep 2009
Location: Pittsburgh
Posts: 739
15 yr Member
Default

Thanks for your thoughts, sarah. Sorry about your back spasms

Mom didn't want to go to the ER because the paramedics, when this first started, said the ER would do nothing for her. I know better as I had bad back spams once, went to the ER, got the drugs I needed, and was fine after, not that I'm saying mom will get all better. But mom is from the generation that doesn't question authority, and hey, the peach-fuzzed little twerps had uniforms on. I wasn't there at the time, or I would have schooled them.

Anyway, the good news is that the second muscle relaxer does seem to be working better, and she said she got a good night's sleep for the first time in 10 days.

To answer your question about additional treatment, she is scheduled for an injection into her spine on the 20th to reduce the inflammation, but I'm blanking on the details at the moment. She's had these before in a different spine location, and they have helped for other pains. Mom has been resistant to my suggestions of either heat or cold. Everyone in my family is weird. This should expain a lot to you.

And thanks for the thowing suggestions, echoes. I was thinking a few rounds of Bocce might be good, although that's underhand throwing, which isn't really cathartic. But it's one of the few semi-physical games I have a fighting chance of winning against a 20-year-old guy. Haven't tried it since getting PN though, so that might not be true any more.
__________________
PPMS Rx 2013, symptoms since 2000
JoanB is offline   Reply With QuoteReply With Quote
Old 05-15-2010, 07:14 PM #3
5280Katie 5280Katie is offline
Junior Member
 
Join Date: Apr 2010
Location: Denver
Posts: 38
15 yr Member
5280Katie 5280Katie is offline
Junior Member
 
Join Date: Apr 2010
Location: Denver
Posts: 38
15 yr Member
Default

I'll add my comments on Baclofen, if I may. I'm truly terrified of it! Long before I became deathly ill last year, I had taken Flexeril for back spasms for over a decade, because of a deteriorating spine (arthriitis, osteo). It always worked without fail, even after my last facet injection when the surgeon actually had to "pound" the needle into the joint.

During my recent illness, they took me off Flexiril (without any replacement) because it interfered with diagnostics. After I'd come home, the pain Dr reintroduced it because of intense spasms from PT - after he worked through more serious pain concerns. I immediately developed urinary problems (the exact opposite - I couldn't go). After much arguing because of my previous long-term usage, he took me off Flexeril and put me on Baclofen. He explained, in excruciating detail, how I had to ramp-on/ramp-off it. My urinary problem stopped almost immediately (it's fairly common in combination with certain other drugs). As I ramped up to full Baclofen dosage, other far more serious problems developed (no spasm relief at any point, either).

Hallucinations (husband's term); he'd find me carrying on long conversations to thin air; I assured him I never, ever saw anybody or thing. I do remember talking, but he said it was clear, involved, normal conversation. Something I absolutely couldn't do back then and still have some problems with because of brain injuries from the illness.

Vivid, terrifying nightmares based on reality. At 1st, I didn't remember dream content. Onset symptoms included throwing myself from bed to floor. Crawling to the bedroom wall, backing into it, huddling into a ball and crying, trembling. Then, running to the master bath, closing/locking the door, turning all the lights on and crying for help. Then, and still significant in extent now, I'm bedridden and can barely walk the distance. My hands are all-but useless. Finally, paralysis in bed, screaming for help. I said reality-based because at the end, I remembered the nightmares clearly. All included my room, its real furniture and electronics in place (TV, computer, radio, phones, down to remote controls). My empty-nest family; husband, all five cats. I will not describe nightmare contents, but they included simply horrendious things.

Dramatic mood swings and paranoia. I cried violently at toilet paper commercials, laughed until it hurt over news stories about war casualties, accident victims, tornado devestation, even 1 that flattened a town 25 miles from our home. Froze up on medical/PT days. Positive they were killing me with medications, excercises, tests.

Least/last of all, constipation to the point of real threat to my life (from a certain type of hemmorhoid). Husband called the pain Dr, we described problems on speaker phones, he said to stop the Baclofen immediately, even tho we both brought up his ramp-off speech about severity of problems with doing that. Really, really bad move; I won't describe the details but people should NOT do this. Needless to say, Baclofen was added to the only 3 meds on my allergy/alert list, which have been listed for almost 40 years. The Dr was most mystified that Baclofen didn't stop the spasms. After all, its target audience are those with spinal cord injuries. I could tell he thought the other problems were in our heads. A quick internet search shows even the manufacturer lists many of them, and patients have reported all/even worse reactions.

Sorry that this got so long; I feel absolutely compelled/driven to list my complications, possible effects that someone else could have - whenever I just see/hear Baclofen. It was that bad for me, even compared to my post-illness life. I finally ended up on Robaxen for my spasms, although I have to take far more and still have less relief than Flexiril provided.

As a side note, I wished I had a Mom like most of yours. Mine is 94 and in assisted living (I"m her legal POA and also have medical POA - I let her stay in there, while she really belongs in the full nursing home wing). She will NOT take her medications. I've implemented the order that the staff remains in her room until they know all pills are down her, even if they have to pry her mouth open and force them down her throat. She's a master at clenching her teeth (all her own), hiding them under tongue/in her cheek, spitting them across the room, and ever other trick. There are some "different" problems with a lady that age, who has all her marbles, and checks them daily to ensure each is still there and in its correct position

Hope some of this provides info/different thoughts and considerations regarding Baclofen. Thanks for reading (or finding a new sleep aid )
5280Katie is offline   Reply With QuoteReply With Quote
Old 05-15-2010, 07:40 PM #4
cyclelops's Avatar
cyclelops cyclelops is offline
Magnate
 
Join Date: May 2007
Posts: 2,049
15 yr Member
cyclelops cyclelops is offline
Magnate
cyclelops's Avatar
 
Join Date: May 2007
Posts: 2,049
15 yr Member
Default

If I am correct, and MRSD, you would likely know better than I, but, anyway, isn't Baclofen similar or related to the benzo's?

It seems to me, if you use a drug for one thing....something else bad happens....honestly, I don't know what to say.
__________________
Some days are not so good
.

.


Others not so bad:
.
cyclelops is offline   Reply With QuoteReply With Quote
Old 05-16-2010, 06:40 AM #5
mrsD's Avatar
mrsD mrsD is offline
Wisest Elder Ever
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Lightbulb

There remains some debate as to how baclofen works:

http://www.ncbi.nlm.nih.gov/pubmed/231227

Quote:
ACTIONS

The precise mechanism of action of baclofen is not fully known. Baclofen is capable of inhibiting both monosynaptic and polysynaptic reflexes at the spinal level, possibly by hyperpolarization of afferent terminals, although actions at supraspinal sites may also occur and contribute to its clinical effect. Although baclofen is an analog of the putative inhibitory neurotransmitter gamma-aminobutyric acid (GABA), there is no conclusive evidence that actions on GABA systems are involved in the production of its clinical effects. In studies with animals, baclofen has been shown to have general CNS depressant properties as indicated by the production of sedation with tolerance, somnolence, ataxia, and respiratory and cardiovascular depression. Baclofen is rapidly and extensively absorbed and eliminated. Absorption may be dose-dependent, being reduced with increasing doses. Baclofen is excreted primarily by the kidney in unchanged form and there is relatively large intersubject variation in absorption and/or elimination.
from http://www.rxlist.com/baclofen-drug.htm

also this is interesting:
http://en.wikipedia.org/wiki/Baclofen

Baclofen is not chemically a benzo...but it does behave like one sometimes. In fact there is a guy on the net who claims it will cure alcohol addiction (in very high doses) which seems like a hard way to do it, to me.

I saw this doctor on TV once not too long ago:
http://www.businessweek.com/magazine...8126_mz018.htm
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

************************************

.
Weezie looking at petunias 8.25.2017


****************************
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
mrsD is offline   Reply With QuoteReply With Quote
Old 05-17-2010, 08:27 AM #6
JoanB's Avatar
JoanB JoanB is offline
Member
 
Join Date: Sep 2009
Location: Pittsburgh
Posts: 739
15 yr Member
JoanB JoanB is offline
Member
JoanB's Avatar
 
Join Date: Sep 2009
Location: Pittsburgh
Posts: 739
15 yr Member
Default

Thanks for sharing your experiences, Katie. Sounds like you really went through hell! Makes me feel almost lucky concerning the Cymbalta withdrawals I'm dealing with right now. I'm sorry you had to go through that. Mom is off the Baclofen now, but we're going through new challenges that anyone with aged loved ones can imagine.

Speaking of dreams, during my Cymbalta withdrawal, I've been having some really epic dreams every night, and by epic, I mean cast of thousands, breathtaking sets, Cecil B. DeMille spectacles. Last night's was more of a theme-park techno-attraction, though. It employed 3-D screens, holographs, and live actors in a huge building with a kabillion rooms that you went through in a self-directed, interactive tour. It had the flavor of Alice in Wonderland meets Sweeny Todd (I'm suspecting a Johnny Depp glitch in the software), so it was whimsically sinister in that 19th-century British way. I woke up and said "wow, if I were willing to $%& my brain with more drugs, I might be rich by now!"

Thanks, cy and mrsD. You both educate me all the time with your info and insights.
__________________
PPMS Rx 2013, symptoms since 2000

Last edited by JoanB; 05-17-2010 at 09:27 AM.
JoanB is offline   Reply With QuoteReply With Quote
Old 05-17-2010, 08:32 AM #7
mrsD's Avatar
mrsD mrsD is offline
Wisest Elder Ever
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Lightbulb

I always have vivid dreams. I don't mind them, except when they turn negative. But that doesn't happen very often (spiders, snakes and being chased are not my faves). And I don't take any antidepressants.

When we go upNorth for the summer, it is soooooo quiet up there, I have way more dreams than usual as well.
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

************************************

.
Weezie looking at petunias 8.25.2017


****************************
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
mrsD is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Need Advice Regarding Baclofen. debbiehub Multiple Sclerosis 4 04-26-2010 07:52 PM
Baclofen sabimax Medications & Treatments 8 04-13-2009 02:34 PM
Baclofen - How Much Do You Take? Kitty Multiple Sclerosis 35 12-23-2008 10:07 AM
Baclofen anyone? debbiehub Reflex Sympathetic Dystrophy (RSD and CRPS) 6 02-18-2008 02:05 PM
Baclofen nhtom Multiple Sclerosis 3 09-07-2007 11:11 PM


All times are GMT -5. The time now is 12:52 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.