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Old 05-27-2010, 04:05 PM #1
TinaG TinaG is offline
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Originally Posted by Mere View Post
TinaG, I have seen Dr. Khurana twice. He seems like a good doctor in that he spent lot of time with me going over my history. He also does a lengthy exam. I will not have a true impression of him until he concludes the diagnostic part of my treatment. In other words, will he drop me like a hot potato if the tests do not show what he is looking for, or, will he sincerely try to help me and not get frustrated with me. This is the make or break as far as I am concerned in a doctor/patient relationship.

One thing that I dislike is the appointment scheduling. Both times I have seen him, my appointments were changed - usually on short notice too. Also, bring a book - he tends to run late.

I think you will like him. He is pleasant, seems very knowledgeable and professional.

I also have an appointment at Johns Hopkins (Dr. Sumner) next week. My regular neurologist made the appointment for me because they were originally able to see me sooner than Dr. Khurana. Of course that changed because I saw Dr. Khurana much earlier than my originally scheduled appointment. I think I will keep the appointment though. Can't hurt to have two opinions.

Do you live in the DC area? I am outside of Annapolis.
Also, does autonomic dysfunction result in itching? I have had intense itching requiring Benedryl when I have been in a bad attack - never knew it was a part of the syndrome.

Best of luck to you,

Mere
Mere, I forgot, there are a few good sites for autonomic disorders. Check out DINET. Or just google itching and autonomic disorders and you will be shocked at the number of symptoms. Remember - our autonomic nervous system controls things that we take for granted: blood pressure, temperature, digestion, etc. I think the itching is from blood pooling in the limbs b/c our blood pressure is so whacky that it cannot get out of our extremeties. Do you get migraines? That is probably my worst symptom!
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Old 05-27-2010, 07:31 PM #2
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I went thru a very bad bout of itching a while back and took Lyrica for it....yes, PN can cause it, so can meds....but, it is worth looking at liver enzymes and your bilirubin.
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Old 05-27-2010, 09:49 PM #3
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Yes, I get migraines and usually they strike right before an autonomic episode. They are so severe and create numbness and stroke-like symptoms. They call them 'complicated migraine'. I feel them in my chest also, like angina and in my abdomen (abdominal migraine). I also get tachycardia (take Verapamil), near-syncope, low blood pressure alterating w/high BP. Severe arm pain and numbness, abdominal pain, severe gastroparesis, alternating temperature (fever to sub-core), bladder dysfunction (problems peeing) and itching. These are things that happen with severe attacks. I had two last year. I have a lesser degree of these symptoms on a day-to day basis with terrible fatigue - I have problems climbing the stairs and I had to quit my day job of 25 years, three years ago. I am now on SSD.

Cyclelops, you know the drill... You have the condition and all of it's horrible atrocities. TinaG... sounds like you have the same problem. Dr. Khurana will definitely see this... He likes you to tell him an event in action, or how you feel on a day-to-day basis, and how it all began. Take notes with you, although, he may tell you to put them away. He does not want to know what other MD's have diagnosed... He does not care as he will make his own conclusions.

I find it strange that this all started after you had a child. I started having autonomic symptoms (tachycardia being the first) after a viral pneumonia and after I had a total hysterectomy about 17 years ago. I often wonder if there was a hormonal shift that caused this, or if it was a viral thing... I wonder?

Hope you are well. You too Cyclelops. Have a good Holiday,

Mere
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