Well, I saw Dr. Khurana yesterday for my second appointment. He gave me another exam and went over my medical records from the past two years. He says that my pupils react slowly to light, that my blood pools in my legs and that my mouth and eyes are dry and he noted that my skin biopsy showed SFN and that my gastric emptying study showed gastroparesis.

He is scheduling me for autonomic testing: Tilt table, blowing into a balloon, QSART and BP/Pulse analysis. This is great news to me as I have not had this type of testing and I have had symptoms for 17 years. I am concerned about going off my medications prior to the testing. particularly the Verapamil.

Interestingly, he told me that he did have a patient that had symptoms of dysautonomia but had a negative skin biopsy. He did proceed with a QSART and that test was positive. Apparently, dysautonomia can be present without having a positive skin biopsy for SFN.

Can someone tell me of their experience with autonomic testing? And, if the tests are positive will this be diagnostic in terms of why I have SFN and AN?

Mere