Quote:
Originally Posted by Mere
Well, I saw Dr. Khurana yesterday for my second appointment. He gave me another exam and went over my medical records from the past two years. He says that my pupils react slowly to light, that my blood pools in my legs and that my mouth and eyes are dry and he noted that my skin biopsy showed SFN and that my gastric emptying study showed gastroparesis.
He is scheduling me for autonomic testing: Tilt table, blowing into a balloon, QSART and BP/Pulse analysis. This is great news to me as I have not had this type of testing and I have had symptoms for 17 years. I am concerned about going off my medications prior to the testing. particularly the Verapamil.
Interestingly, he told me that he did have a patient that had symptoms of dysautonomia but had a negative skin biopsy. He did proceed with a QSART and that test was positive. Apparently, dysautonomia can be present without having a positive skin biopsy for SFN.
Can someone tell me of their experience with autonomic testing? And, if the tests are positive will this be diagnostic in terms of why I have SFN and AN?
Mere
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Hi, I too have had a ton of symptoms (fainting, migraines, bloating, nighttime itching, spaced out feeling, chronic fatigue, mouth sores, blah, blah, blah..) for almost 15 years and the only real test I have had is the TTT, which really wasn't that bad at all. I wish I had more answers for you, but I have a question. I am going to see Dr. Khurana next month (after waiting 5 months). I cannot wait! Can you tell me if you were happy with him? I am hoping and praying that he will find out why I am this way. I have yet to find a doctor that is really knowledgeable about autonomic disorders (other than Peter Rowe at Hopkins - who is AWESOME, but won't take adults) and I am really excited about my appointment. Any advice would be great. You could email me directly if you want. THANK YOU!
05-26-2010, 06:30 PM
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