I met with my Neurologist and primary care physician yesterday for a regular checkup. Spinocerebellar Ataxia is progressing. Not at a fast rate but it is progressing. Many things that I used to be able to do are just not possible now. Good things was all other tests came back great. Blood tests came back amazing. Good blood pressure, cholesterol good/and bad are at healthy levels. Platelete levels are good. Vitamin levels are good. I have changed my diet to a mostly Raw food/fruit/vegetable diet. Lots of home juicing with organic produce and regular exercise (swimming). I would be a healthy 40 y/o old except for this damn disease that is causing my Cerebellum to shrink and affect my balance, fine motor skills, cognitive abilities, and to some extent my speech.

Dewey

I would be interested to hear how you improve with that diet & exercise. I think you are doing the right thing. Also consider stress reduction like meditation, yoga, guided imagery, etc. And beer is good too. Good luck.
Electron

That has to be really tough... I can certainly feel your frustration!

Perhaps with time, the new diet (hopefully avoiding gluten) you will stop progressing.

I will keep sending you positive thoughts in the meantime.