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Old 07-11-2010, 12:39 AM #11
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Lance is pretty amazing, but I'm also sure he had the best Doctors and nutritionists in his corner. There are things I learned since via the net that had I understood about PN might have helped
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Old 07-11-2010, 06:41 AM #12
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Lightbulb

Competitive athletes typically use tons of supplements.

Also some chemo drugs are "worse" than others as far as neuropathy inducers.
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Old 07-11-2010, 10:37 PM #13
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Well my organic beets scared the heck out of me this week.

I remembered this year, that beets turn your pee red.....I forgot it turns your poo red....and everything else in the toilet bowl red....cripes! Sorry to get so graphic.....

My Diltiazem had me so constipated this last week that I almost croaked from the cramps(You are correct Mrsd).......

I looked before the flussssshhhh. Don't ask me why, but it took so much effort I thought it best to perhaps take one short glance at what I so painfully extruded.... Just to make sure it didn't have a gender.....

OMG....quick.....get me to the ER....holy cow.....then my hubby says....,'Hey, didn't you eat beets yesterday?" Duh....

Maybe beets will 'eliminate' my neuropathy?? They have managed to disapate my dignity. I think I will sell the rest of them....
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Old 07-12-2010, 12:49 AM #14
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That would've scared the hell out of me, because thats what happened and led to the discovery of the tumor , only the color was darker.

I hate beets so I wouldn't have known. I haven't had one since the night my mother and I went to war over them at age 3. I won


Made it 52 hours the 1st day w/o gabapentin on the supplements, last 2 days have been a struggle at around the 20 hour mark. May need a vicodin tonite.

Realize it's gonna take some time, but it's a great start. I'm thinking there may be a withdrawal or rebound effect to cutting the gaba.

Will search here in a few, but am wondering at the moment about medical pot for PN pain. I have the card to get it, but I quit smoking cigarettes 10 years ago and don't want to reestablish that habit, so I'm willing to try it, but need to find the candies. Plus I'm not really into pot though it's probably better than vicodin

I've been recommending this site. Really glad I found it. Thank you guys for all the help
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Old 07-12-2010, 05:18 AM #15
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It is really best to taper off gabapentin. Ask your doctor for an RX for 100mg to help you do this.

I am glad you are feeling hopeful. This is a good sign.
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Old 07-12-2010, 04:55 PM #16
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Actually my mood is much better since I started with the supplementation. Much more energy and positive attitude, leading to the will to fight LOL

The little Gaba I try to take has been a downer. I don't feel like doing much. To get up, i was doing a 12 pack of SPRITE a day. So I was getting up and crashing all day long. I've gained about 50lbs in probably a little over 4 months

I've had the will to fight the junk urge and have eaten clean since starting this. Only had 2 sodas in almost 4 days. I directly link this to the supplementation because it's given me "some" energy, which I haven't had since starting gabapentin
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Old 07-12-2010, 04:56 PM #17
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ROFL! Cyclelops! You keep me laughing! I am going to get suspicious about your meds! LOL!!!

Unstop... MrsD is right on... hope is a great thing!
As for the MMJ.. there are a few threads around on this topic.
Seems to have mixed reviews.

My Best to You!
~DejaVu
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Old 07-13-2010, 01:06 AM #18
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Quote:
Originally Posted by DejaVu View Post

Unstop...
As for the MMJ.. there are a few threads around on this topic.
Seems to have mixed reviews.

My Best to You!
~DejaVu
Found them. Thank you
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Old 07-13-2010, 02:53 PM #19
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Definitely feel more energy in spite of having to take vicadin last 2 nights. The problem is the burning has increased, but the cramping is less. I don't normally take vicadin for this, but it was instant relief. i took a gabapentin again this morning

This could be a good sign or bad, but maybe I need to back off and restart. Yesterday, I'd upped to the full dosages recommended: Metyl B12 5000, 500mg Acetyl-Lcarnitine 2x's,Benfotiamine 300mg 2x's, alpha liopic acid 200mg, Qunol C0Q10, Cod liver oil 2x pharm grade and magnesium

I'm also on the last dayof Amoxicillin. and I went swimming last 2 days and water tends to affect it for me. Not sure if clorhine might be an issue

Seeing as how I was taking a B-complex, Fish oil and CoQ10 prior to starting this, I was thinking about doing the Methyl B-12 and maybe the benfotiamine, fish oil, CoQ10 and magnesium for a few days and backing off the rest to see what happens

Any thoughts are appreciated
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Old 07-13-2010, 03:01 PM #20
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Lightbulb

If burning is increasing, try rubbing in Biofreeze to the areas.
(if it is all over, just pick the most affected area)...

Biofreeze will block burning for hours. You can buy on the net, or from chiropractors, or PTs. There are some savings places that have it quite low in price. (I buy mine in 3's).

Start with one tube, and see how that works. I find after a few days, the burning lets up some. So you may not need it every day.

The magnesium is probably the major player in reducing the cramping.
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