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Old 07-13-2010, 03:44 PM #1
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I'll try biofreeze. Do you think backing off on the suppliments is a good idea or is this maybe a syptom of recovery? I'm realizing it's detective work
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Old 07-13-2010, 05:01 PM #2
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I think if you have no other symptoms from the supplements, that you should continue.

There are changes that may occur. Supplements are slow going. They are not like drugs. They slowly insert into systems that need them.

Basically I have not seen anyone have "negative" changes...enough to be concerned about stopping. There are NO changes, sometimes, for a time period...because the body has to adapt to having nutrients it was missing. Things sort of have to "wake up"...and get going again.

The biggest change is to your wallet. And I am not trying to be funny...but it is true. These are costly and many people cannot afford them. The supplements we all use here are very benign. But don't hesitate to report here...because we all learn from each other. I've used high dose supplements for 10 yrs, and I have no cancer yet... I am in my 60's.

Some nutrients... esp folate now... are implicated in "feeding cancers". The increase folate suggestions for young women have led to some increase in colon cancers. This doctor came on a thread recently and addressed this new concern:

http://neurotalk.psychcentral.com/post663808-20.html

This is the whole thread:
http://neurotalk.psychcentral.com/sh...ghlight=Metanx

This problem refers specifically to folate and cancer so far, and is pretty new.

I've talked to an oncologist, who was clueless about nutrients and chemo. And I've talked to a breast cancer patient who credits her survival to using flax oil during her chemo. So there are no real answers to everyone out there.
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Old 07-13-2010, 05:56 PM #3
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First off, thank you for all the time you've given to me over the last few days. I really appreciate it.

I'm taking from your post and links that everything should be go to go. The Folic Acid is a concern as my tumor was colon and I get the pleasure of yearly colonostopies I don't think I'm taking it at all...am I?


Yeah the cost of suppliments is no laughing matter, but laughing makes the pain go away
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Old 07-21-2010, 06:45 PM #4
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I was supposed to take Gabapentin 3 times a day, 600 mg each time. I was falling asleep standing up! I now only take it at night - 900mg. I see some difference over not taking it at all which I did for a week, so I continue the nighttime only program which my doctor approved. And, of course, I sleep like a baby. I also have tried acupuncture and electrical pulses, neither of which helped me at all. I'm pretty well convinced that the chemo damaged my nerves severely and they ain't gonna be getting any better but I keep plodding along doing whatever I can to enjoy life. Walking the golf course it out, but there are still carts

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Originally Posted by unstpabl1 View Post
Hi. I discovered this forum last night and spent the last 6 hours or so reading thru it till I confused myself

Thanks to the folks that run it. There is a ton of great info.

I have neuropathy in the toes and fingers from chemo that ended last December. It got worse about a month and a half after chemo ended. Minor in the fingers and after reading the forum I'm much better off than most. I didn't know anything about this before.

I've been on gabapentin since Feb. I absolutely hate it. I try to only take 300mg's a day. My prescription is that 2x's a day. I'm in a fog. I gotta get off this crap

I read thru the suppliment section and am wondering if I'm on the right track. Today, I bought Jarrow Methyl B12 5000, Doctors Best Benfotiamine 150 mg, Acetyl L-carnitine 250 mg and Magneseum 1250 mg.

I probably can't get tested because I'm on Medical but will ask. Reading about B-12 deficiencies, I'm a good bet

Using the Suppliment Sticky I'm looking at Methyl B12 5000 mcg once a day?
500mg Acytyl once or twice a day? 300mg Befotiamine once or twice a day?
Magnesium twice a day? I picked it all up this morning

Yup it's a newbie question

Is it better to take them all together or separate them through the day and to start with a lower dose?

I would appreciate any guidance as this is new to me. Being a regular on many forums I realize what a PIA it is sometimes to answer the same things, but I swear I read asw much as my brain could handle in my gabapentin fog

Thanks
Mike
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Old 07-22-2010, 01:02 AM #5
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Quote:
Originally Posted by GolfPat View Post
I was supposed to take Gabapentin 3 times a day, 600 mg each time. I was falling asleep standing up! I now only take it at night - 900mg. I see some difference over not taking it at all which I did for a week, so I continue the nighttime only program which my doctor approved. And, of course, I sleep like a baby. I also have tried acupuncture and electrical pulses, neither of which helped me at all. I'm pretty well convinced that the chemo damaged my nerves severely and they ain't gonna be getting any better but I keep plodding along doing whatever I can to enjoy life. Walking the golf course it out, but there are still carts
I caddied before this happened Now I'm extremely uncomfortable in shoes. so I'm not working at all.

i was instructed to take 300mg gabapentin 2xs a day, but it really brings me down. So I mostly was taking 1 at night and 2 when needed. Yours is much more severe looking at the dosage, but I do want to offer you some optimistc yet guarded hope

I'm not quite at the 2 week mark since starting this and I'm not taking the full dosage of supplements that I listed here. I'm not taking alpha liopic/R-liopic yet. i'm only taking 300mg benefiatimine, 500 mg acetyl L ....., 1 magnesium, CoQ10.

I've had 2 days where i needed Gaba 2x's and I'm on my second over 48 hour period without any. One of the days I needed a 2nd gaba, I slept for a few hours w/o socks on. A first since this started. I also am more upbeat since starting this so the supplements are helping my mood.

So I'm saying that maybe this regimen may lower the amount of gabapentin I'll need and hopefully eliminate it entirely. Personally, I expect a full recovery Hopefully, if it's helping me maybe it'll reduce the dosage of gaba for you.

I'll post here either way so others can see what happens

And carts are the only way to play golf, because they have drink holders

Be Well
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Old 07-22-2010, 06:06 PM #6
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Quote:
I like that analogy... I was limping along earlier this summer like that old DeSoto!
What was that funny-looking AMC car from the 70's that had a tendency to burst into flames on impact? That'd be me, or at least my feet.

Gabapentin: I was on 3600mg a day, and didn't notice a bit of sleepiness. One neurologist was heard to ask, "how is it possible that you're conscious?"

Funny how we have such different reactions to these things.
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Old 07-23-2010, 12:28 PM #7
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The AMC Pacer or the Gremlin. The pacer looked like a fishbowl on wheels. It may be the ugliest car ever

You woulda made a great fighter. Nobody coulda knocked youse out

On another thread it was recommended to take CoQ10 AM and PM 100mg. I'm taking an Ultra high absorbtion buy Qunol. Says up to 6x's the absorbtion. can you take too much CoQ10? Think the Ultra High absorbtion thing is a gimmick?

Oh I'm on the 2nd 48 hour period in a row w/o needing Gabapentin(a first) and Week 3 starts today
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Old 07-23-2010, 12:50 PM #8
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Yeah, I thought it was the Pacer too, but I Googled "AMC Pacer fire" and didn't find any reference to that little problem.

But here's validation of your "ugliest" speculation: http://theweeklydriver.com/2010/01/2...rs-ever-built/

I'm not a good fighter, though...I punch like a girl in addition to throwing like one.
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