[tnalawson]

Can autonomic small fiber neuropathy cause pain in joints, hips and spine, he also has warmth. it seem activity and stress trigger it. We are scheduled IVIG for myasthenia gravis and neuropathy. On top of the muscle weakness and spasms and pain, the bone is different pain. He has stenosis and spondylosis, w/ a spinal stimulator.
we are also battling bladder troubles and several doctors have mentioned MS, but his brain MRI noncontrast was clear. What could be causing the bone pain, he is also low amino acid, testerone, and vit d.

[cyclelops]

I have autonomic SNF, receive IVIG, and I have bone pain....I have lots of issues with arthritis, and I do have autoimmune stuff going on, so hard to say....but that deep aching stuff, I have had that for quite a while and it seems to be getting worse.

[shiney sue]

Any where wish i could go right back on IVIG because you don't know or forget haw bad the pain is without it. I agree with C oh darn it. : Many
Blessing to all Sue

[smae]

Originally Posted by shiney sue

Any where wish i could go right back on IVIG because you don't know or forget haw bad the pain is without it. I agree with C oh darn it. : Many
Blessing to all Sue

Why can't you?

[cyclelops]

I am hoping I can stay on it....

There are lots of reasons you go off IVIG, insurance denial is probably number one. Other reasons are allergic reaction or kidney issues. There are other adverse reactions as well.

With kidney issues, the body can't clear all the protein that is in IVIG.

Maybe Sue will fill us in on how she is doing?? Sue??