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Old 07-31-2010, 12:58 PM #11
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Every single time I get out of bed, my legs and feet turn so dark purple that they are almost black. I thought it was a circulation problem, so I went to a vascular doctor (this was months after I was diagnosed with PN). He checked for clots and whatnot, but I was fine. I guess at the time I went to the doctor, it was only turning red, not purple. But since then, it has turned purple and now almost black. I look like I am African American--and I am the most pale person there is. To classify me as white is an understatement. I am bedridden--not because of the PN, but because of this problem. The blood is pooling down into my legs and feet and causing the purple--which brings horrible horrible pain and pressure that I can't stand. The vascular doctor said he can't do anything about it, as it is a symptom of PN. He said that he rarely sees it, as it's a sign that happens usually only in the most severe cases or in cases where there is another problem already related to circulation.
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My name is Sarah and I am 25 years old. I have a lot of chronic health problems. Peripheral neuropathy and POTS (postural orthostatic tachycardia syndrome) keep me bedridden the majority of the time. I also struggle with degenerative disc disease, disc desiccation, spondylolisthesis, arthritis, polycystic ovarian syndrome (PCOS) with insulin resistance, allergies, sound sensitivities, and other health problems.
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Old 08-02-2010, 08:36 AM #12
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Sara Mae,

I am sorry this is happening to you. Have you been to another doctor? Could it actually be a vascular issue? From what I've been reading, it looks like it could be possible.

I will be scheduling a doc's appointment later in the month. Right now, I simply don't have time. Thanks for all who've responded. I greatly appreciate it.


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Originally Posted by Sarah Mae View Post
Every single time I get out of bed, my legs and feet turn so dark purple that they are almost black. I thought it was a circulation problem, so I went to a vascular doctor (this was months after I was diagnosed with PN). He checked for clots and whatnot, but I was fine. I guess at the time I went to the doctor, it was only turning red, not purple. But since then, it has turned purple and now almost black. I look like I am African American--and I am the most pale person there is. To classify me as white is an understatement. I am bedridden--not because of the PN, but because of this problem. The blood is pooling down into my legs and feet and causing the purple--which brings horrible horrible pain and pressure that I can't stand. The vascular doctor said he can't do anything about it, as it is a symptom of PN. He said that he rarely sees it, as it's a sign that happens usually only in the most severe cases or in cases where there is another problem already related to circulation.
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Old 08-02-2010, 11:29 AM #13
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No.. I said in my message that he said it was not a vascular problem. The vascular doctor said that as well as my neurologist. I thought it was, but apparently it isn't.
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♥ "Hope is more than a word; it's a state of being. It's a firm belief God will come through. Life brings rain... hope turns every drop into the power to bloom like never before." -Holley Gerth ♥

My name is Sarah and I am 25 years old. I have a lot of chronic health problems. Peripheral neuropathy and POTS (postural orthostatic tachycardia syndrome) keep me bedridden the majority of the time. I also struggle with degenerative disc disease, disc desiccation, spondylolisthesis, arthritis, polycystic ovarian syndrome (PCOS) with insulin resistance, allergies, sound sensitivities, and other health problems.
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