advertisement
Reply
 
Thread Tools Display Modes
Old 08-08-2010, 09:03 PM #11
cyclelops's Avatar
cyclelops cyclelops is offline
Magnate
 
Join Date: May 2007
Posts: 2,049
15 yr Member
cyclelops cyclelops is offline
Magnate
cyclelops's Avatar
 
Join Date: May 2007
Posts: 2,049
15 yr Member
Default

The new bed is very nice....just a titch high....and of course, the luxurious footboard....ah yes, be careful what you wish for, eh?

We bought a newer home, one third the size of our old home and thought this downsize would be fairly easy since most of the kids were gone....eeesh....It has been a lot like packing for vacation and not being able to get the luggage closed. Plus the house had a few 'design' issues, and a few shortcuts, that needed repair....can we say 'money pit?'

So, we endeavored to remodel things....sort of. This too shall pass. The view is great, the neighbors nice and appropriately geographically distant....and I got my small acreage....and chickens. On a good day, it's heaven....on a bad day, it's a whole lot of pain pills, and a few curse words.
__________________
Some days are not so good
.

.


Others not so bad:
.
cyclelops is offline   Reply With QuoteReply With Quote

advertisement
Old 08-09-2010, 01:33 AM #12
unstpabl1 unstpabl1 is offline
Junior Member
 
Join Date: Jul 2010
Posts: 37
10 yr Member
unstpabl1 unstpabl1 is offline
Junior Member
 
Join Date: Jul 2010
Posts: 37
10 yr Member
Default

Quote:
Originally Posted by Sheltiemom View Post
Hi, cycleclops -

First things first - those undies I suggested are truly great or I'd not suggested them. Hope you try and are as happy as I am about your choice.

About the new bed - sounds like something from a Stephen King novel - like maybe "Cristine II?"

Secondly, yes - am aware that dietary supplements must be used with great care, especially when taking meds and/or certain other supplements. The benfotiamine form of B1 was recommended here in a reply by unstapbl(sp?) to this topic of yours, I think because it might be a superior(?) form of it rather than plain old thiamine.

I'm not recommending anything either. I can only say what was recommended to me or refer you to the thread. And that "I BELIEVE" it's helping.

Your correct on the Benefotiamine. The 150 mg capsules I have are less than half the size of my 300mg Gabapentin, Which I ASSUME is the same size as the Neurontin. The R-Liopic is the same size

My main purpose in posting wasn't to advocate a regimen to Cyclops,as I'm not qualified, but to offer you the Chocolate milk tip and to let you know the sizes of the capsules. Also to offer empathy as I hate swallowing pills but I'm much better at it now

Mr.s D is on vacation but is very knowlegable on this stuff and can at least direct you to threads and other sources that may help you. i think your right to take seriously anything you put in your body. And to by extremely discretionary about whom you take advice from. I'm certainly not that guy LOL
unstpabl1 is offline   Reply With QuoteReply With Quote
Old 08-09-2010, 10:24 AM #13
kpRN kpRN is offline
Member
 
Join Date: Jan 2010
Location: Van Wert, OH
Posts: 105
10 yr Member
kpRN kpRN is offline
Member
 
Join Date: Jan 2010
Location: Van Wert, OH
Posts: 105
10 yr Member
Default Swelling is forcing me to cut back dosage

I am currently taking 600 mg 4x a day. Have noticed some pitting edema in the lower extremities and my fingers look like snausages. I am going to taper the Neurontin down to a dose where I can tolerate both the pain and the side effects. My doc from CC told me to start Alpha lipoic acid 600 mg a day to see if that helps with the burning / pain. What I would really like to do is stop the neurontin all together and see if it is helping at all. But then, I am too chicken to take the chance. Going to look up some of the old posts and find the supplement regimen that alot of folks are on and see if I can go to that completely. Plus........have gained at least 10 pounds since January. Never saw that happening until BLAM.....next size up, please when I recently went shopping.
kpRN is offline   Reply With QuoteReply With Quote
Old 08-09-2010, 01:42 PM #14
cyclelops's Avatar
cyclelops cyclelops is offline
Magnate
 
Join Date: May 2007
Posts: 2,049
15 yr Member
cyclelops cyclelops is offline
Magnate
cyclelops's Avatar
 
Join Date: May 2007
Posts: 2,049
15 yr Member
Default

I think MRSD posted something on lipoic acid and a specific kind to take....one would have to weed thru the old posts. I would like to try it. I know my diet is not up to snuff, especially when I go into what I call 'autonomic meltdowns' where I have nausea, early saiety, constipation, increased pain and dizziness....it comes in waves and I am in one now....usually they come right after some major stressor, (just had one with my one daughter and her husband and child moving in and out of the house....and with being bestowed a 6 month old infant from another daughter who is deploying)

So, I am in a tizzy state and I don't eat well, sleep well, or nuthin'.

I get so muddled up with all the different kinds of stuff.....I almost need some one to develop a program for me with the correct supplements.

One thing I do get is sunshine Vitamin D. I am outside a lot and go into winter loaded with D.....but it declines to below normal by Spring.

My postassium is always low....as is calcium and bicarbonate....chloride and sodium are high, which seems to me like kidney issues.

Well, I have put in a full day of work already with baby and his needs....and I am pooped....looking at my lawn that needs mowing....OR, how bout this...I need a sheep or goat!!
__________________
Some days are not so good
.

.


Others not so bad:
.
cyclelops is offline   Reply With QuoteReply With Quote
Old 08-09-2010, 03:17 PM #15
kpRN kpRN is offline
Member
 
Join Date: Jan 2010
Location: Van Wert, OH
Posts: 105
10 yr Member
kpRN kpRN is offline
Member
 
Join Date: Jan 2010
Location: Van Wert, OH
Posts: 105
10 yr Member
Default Act II on the comedy show

OK Cyclelops....... I just might have you beat on the pill swallowing act. I swear I never try to take pills in public because I "look a fool." I am a closet pill swallower. I try to time my doses so NO-ONE has to / or can watch. Here is the routine....I put the pills in my mouth (of course, one at a time) take a drink, bend low at the knees and the POP-UP real quick as tho gravity is gonna help get those pills to where they need to be. I am sure it is comical none the less. Funny thing is that I go through periods where I can swallow just fine and then all of a sudden it is as tho my esophagus has a stricture and nothing passes. I am constantly choking. What a mess...only thing I can do is laugh cuz otherwise I would spend my day crying!! Out to the garden to see what the Lord has blessed us with today!! Take care everyone.
kpRN is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
unstpabl1 (08-09-2010)
Old 08-09-2010, 08:55 PM #16
Joano Joano is offline
Member
 
Join Date: Oct 2009
Posts: 212
10 yr Member
Joano Joano is offline
Member
 
Join Date: Oct 2009
Posts: 212
10 yr Member
Default

Hi, cycleclops
Let me join this conversation. I get great relief from benfotiamine--I take one pill four times per day, Dr.'s Best 150 mg. ea. I also take a bunch of other supplements similar to those posted, and the only one I've had a problem with is alpha lipoic acid--it always upset my stomach even when I took it with food; however, the r-lipoic acid does not so that is my pill of choice now. Joan
Joano is offline   Reply With QuoteReply With Quote
Old 08-09-2010, 09:05 PM #17
cyclelops's Avatar
cyclelops cyclelops is offline
Magnate
 
Join Date: May 2007
Posts: 2,049
15 yr Member
cyclelops cyclelops is offline
Magnate
cyclelops's Avatar
 
Join Date: May 2007
Posts: 2,049
15 yr Member
Default

So, is r-lipoic readily available? And the benfotamine.
__________________
Some days are not so good
.

.


Others not so bad:
.
cyclelops is offline   Reply With QuoteReply With Quote
Old 08-09-2010, 09:46 PM #18
unstpabl1 unstpabl1 is offline
Junior Member
 
Join Date: Jul 2010
Posts: 37
10 yr Member
unstpabl1 unstpabl1 is offline
Junior Member
 
Join Date: Jul 2010
Posts: 37
10 yr Member
Default

Quote:
Originally Posted by Joano View Post
Hi, cycleclops
Let me join this conversation. I get great relief from benfotiamine--I take one pill four times per day, Dr.'s Best 150 mg. ea. I also take a bunch of other supplements similar to those posted, and the only one I've had a problem with is alpha lipoic acid--it always upset my stomach even when I took it with food; however, the r-lipoic acid does not so that is my pill of choice now. Joan
Same here on the Alpha Liopic and I was only doing 200mg a day. No problems with the R-liopic and it's only 100mg's a day as opposed to 600. Plus the capsule is half the size. I "think" it's discussed in the thread I started which is on the next page. I'll bump it. "CHEMO NEUROPATHY"


Joano, why do you spread the Dr's Best over 4x's the day? Just curious or nosey depending on your perspective
unstpabl1 is offline   Reply With QuoteReply With Quote
Old 08-10-2010, 06:02 AM #19
lizziebeth lizziebeth is offline
Junior Member
 
Join Date: Jul 2009
Posts: 46
10 yr Member
lizziebeth lizziebeth is offline
Junior Member
 
Join Date: Jul 2009
Posts: 46
10 yr Member
Default

I order most of my supplememts,including R-lipoic and Benfotiamine from Vitacost. The prices seem good and I've had no problems with customer service. I know that Mrsd has made reference to iherb, but i haven't tried them yet. Cyclops, A low profile box spring would lower the height of your bed by a few inches. We had the same problem and were quite pleased with the switch to a low profile box spring. Also, I'm right there with you with the Neurontin trial. It's my first attempt at meds, other than supplements, for my neuropathy. I've always been very sensitive to meds (I suspect I'm lacking in 2d6). I started out at 100mg tid...a little spacey at first (my husband says how could he could tell the difference). I just went up to 200mg tid yesterday. So far so good... I hope you do well. Take care, Liz
__________________

Balance effort with surrender
lizziebeth is offline   Reply With QuoteReply With Quote
Old 08-10-2010, 12:00 PM #20
cyclelops's Avatar
cyclelops cyclelops is offline
Magnate
 
Join Date: May 2007
Posts: 2,049
15 yr Member
cyclelops cyclelops is offline
Magnate
cyclelops's Avatar
 
Join Date: May 2007
Posts: 2,049
15 yr Member
Default

Oh, we are not using a box spring. it's fine...just a tad high, but worth it.
__________________
Some days are not so good
.

.


Others not so bad:
.
cyclelops is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
? about Neurontin doydie Multiple Sclerosis 2 09-08-2009 11:53 PM
Neurontin aprilfools Multiple Sclerosis 23 08-05-2009 02:28 PM
Neurontin and swelling! . . . Neurontin and incontinence! lefthanded Peripheral Neuropathy 13 05-24-2008 04:58 AM
what is neurontin? lostmary Reflex Sympathetic Dystrophy (RSD and CRPS) 8 06-14-2007 01:42 PM
Neurontin? theoneRogue420 Reflex Sympathetic Dystrophy (RSD and CRPS) 13 05-13-2007 05:24 PM


All times are GMT -5. The time now is 07:31 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.