My official diagnosis as of Jan.2010 was mixed axonal and demyelinating peripheral polyneuropathy. However, I have been battling this "at least in my mind, or so I was told" since at least 1996. I did notice in a progress note back from 2000 there was mention of "a new feature and that is some tremors have started. It is a very fine, low amplitude, high frequency tremor more with suspension and action." I also never took any meds for this and it seems to come and go. It does cause me concern with my occupation and it has been so severe at times that others have commented on it. (Waiting for my official report from my skin biopsies and EMG/NCS from Cleveland clinic to see if the diagnosis is the same as I received in January. Will keep you all posted on that as soon as I get it.) Having a big family get together at our place this weekend and have lots to do. My husband said "try not to do too much today." Who does he think is going to get it done if I don't do it?? I just have learned to roll with the punches as best I can. If it isn't one thing, it is something else and I expend too much energy trying to control things that are out of my control. Off to "work" I go.

Thank you for all your replies, don't feel so alone now.

Sheltiemom - Were your tremors at rest and where did they occur? The other thing I didn't mention was muscle faciculations (twitches), does anyone get them? What confuses me is SFN should only include sensory symptoms, not motor symptoms (tremor & twitches of muscle) because motor fibres are large fibre.......if I am understanding this correctly.

Hi, Invisable -

I had what felt like internal tremors or shaking, hard to describe. Otherwise, it was only mild hand tremors, left and right, which show up only once in long while now. Haven't had the internal kind for months.

As to the fasciculations, had them in the legs on occasion before this thing began but not for many months now.

Non-length dependent SFSN is a tough one.

Sheltiemom

Hi, Invisable - posted my reply directly at your topic, but it didn't seem to take. My tremors were "internal," hard to describe, but haven't had that for a number of months. Otherwise, just mild hand tremors and they are only occasional now.
Had what might have been fasciculations well before this thing began but not for a long time.

Sheltiemom

I get very deep twitches which feel as though they are occuring "very" deep in the muscle. They happen at rest and while active. I also get the vibrating sensations, but those feel completely different from the twitches. I haven't got any tremors yet.