advertisement
Reply
 
Thread Tools Display Modes
Old 08-13-2010, 09:02 AM #11
rscowboy2005 rscowboy2005 is offline
Member
 
Join Date: Oct 2009
Location: Pacific Northwest
Posts: 109
10 yr Member
rscowboy2005 rscowboy2005 is offline
Member
 
Join Date: Oct 2009
Location: Pacific Northwest
Posts: 109
10 yr Member
Default

Is there some division of the Department of Health (CDC??) that maintains these numbers?

Maybe since there is no single drug that can alleviate the symptoms (let alone cure the damage), no one reports it.

CB
rscowboy2005 is offline   Reply With QuoteReply With Quote

advertisement
Old 08-13-2010, 10:02 AM #12
echoes long ago's Avatar
echoes long ago echoes long ago is offline
Senior Member
 
Join Date: May 2008
Location: new york
Posts: 1,581
15 yr Member
echoes long ago echoes long ago is offline
Senior Member
echoes long ago's Avatar
 
Join Date: May 2008
Location: new york
Posts: 1,581
15 yr Member
Default

in the warnings for statins now it says to discontinue use if you have muscle pain after taking it.
echoes long ago is offline   Reply With QuoteReply With Quote
Old 08-13-2010, 11:42 AM #13
Joano Joano is offline
Member
 
Join Date: Oct 2009
Posts: 212
10 yr Member
Joano Joano is offline
Member
 
Join Date: Oct 2009
Posts: 212
10 yr Member
Default

I'm pretty sure my PN was caused by lipitor; however, it came on so gradually that when I finally realized I had a problem, so much time had elapsed since I began the lipitor that I didn't even consider it to be the cause. My daughter-in-law alerted me to it when she read an article in The Peoples Pharmacy column which appears weekly in our local newspaper.

I have since mentioned it to my first neurologist, a cardiologist, and of course my primary physician, all of whom "have never heard of statins causing PN."

Joan
Joano is offline   Reply With QuoteReply With Quote
Old 08-13-2010, 11:55 AM #14
Sheltiemom18 Sheltiemom18 is offline
Member
 
Join Date: Jul 2010
Location: Cleveland, Ohio suburb
Posts: 270
10 yr Member
Sheltiemom18 Sheltiemom18 is offline
Member
 
Join Date: Jul 2010
Location: Cleveland, Ohio suburb
Posts: 270
10 yr Member
Default

I will never be on statins again. Don't care what happens to the cholesterol and lipids if I can't do Niaspan - my last resort.

If in fact I don't have Sjogren's and all my symptoms are realted to the SFSN, then I'd be fairly sure that it was the statins that caused this.

Anybody have any ideas about how to contact Dr. Gupta, especially, as he's a neurologist; Dr. Oz or try to somehow find out if there's any well-known celebrity who has peripheral neuropathy?
Sheltiemom18 is offline   Reply With QuoteReply With Quote
Old 08-13-2010, 03:43 PM #15
cyclelops's Avatar
cyclelops cyclelops is offline
Magnate
 
Join Date: May 2007
Posts: 2,049
15 yr Member
cyclelops cyclelops is offline
Magnate
cyclelops's Avatar
 
Join Date: May 2007
Posts: 2,049
15 yr Member
Default

Geez, I better put hubby on a diet......
__________________
Some days are not so good
.

.


Others not so bad:
.
cyclelops is offline   Reply With QuoteReply With Quote
Old 08-14-2010, 07:17 AM #16
darlindeb25's Avatar
darlindeb25 darlindeb25 is offline
Member
 
Join Date: Aug 2006
Posts: 744
15 yr Member
darlindeb25 darlindeb25 is offline
Member
darlindeb25's Avatar
 
Join Date: Aug 2006
Posts: 744
15 yr Member
Default

Just wanted to add here, drugs, diabetes, and malnutrition from food intolerances. My neuropathy was caused by not absorbing vitamins and minerals because of gluten. It seems PN often times is a secondary disease.

I do find there are lots of us out there, just not enough talk about the entire issue.
__________________
Deb

We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!
darlindeb25 is offline   Reply With QuoteReply With Quote
Old 08-14-2010, 08:24 AM #17
nide44's Avatar
nide44 nide44 is offline
Senior Member
 
Join Date: Aug 2006
Location: Chesapeake Bay, Land O' Pleasant Livin'
Posts: 1,660
15 yr Member
nide44 nide44 is offline
Senior Member
nide44's Avatar
 
Join Date: Aug 2006
Location: Chesapeake Bay, Land O' Pleasant Livin'
Posts: 1,660
15 yr Member
Default

Quote:
Originally Posted by Sheltiemom View Post
Was anybody on a statin? I was on three different ones for 12 years - Zocor, Lipitor and Zetia...............
Zetia is not a statin.
It is used in place of (or in addition to), statins in many cases.
I was switched to it, when a statin caused ill side effects.
I have been taking it for over 3 years, now.
It does not affect my PN, & is not a cause of PN..
__________________
Bob B
nide44 is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Tremor demographics rd42 Parkinson's Disease 4 12-29-2009 12:33 PM
DSL questions Riverwild Computers and Technology 25 12-28-2008 03:59 PM
More questions on vit d Monica de Lara Vitamins, Nutrients, Herbs and Supplements 5 03-31-2008 08:58 PM
Questions.. Silverlady Peripheral Neuropathy 17 04-20-2007 07:12 AM


All times are GMT -5. The time now is 01:29 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.