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Old 08-13-2010, 07:05 AM #8
glenntaj glenntaj is offline
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Join Date: Aug 2006
Location: Queens, NY
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glenntaj glenntaj is offline
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Join Date: Aug 2006
Location: Queens, NY
Posts: 2,857
15 yr Member
Default There is, actually, a neuropathy walk--

--in NYC each year, through the Neuropathy Association, and Cornell-Weill's people are associated with it.

But you are all right, the condition does not have anywhere near as high a profile as many other neurological conditions that affect fewer people.

It is estimated that in the US, there may be 10 million neuropathy sufferers. That's far more than suffer from MS, Myasthenia Gravis, and Parkinson's combined.

I've written about this problem many times, speculating whether the problem is lack of a high profile celebrity talking about neuropathy--Parkinson's has Michael J. Fox, for example--even though people as diverse as Mary Tyler Moore, Bobby Short, Johnny Cash, and Andy Griffith have suffered from one form of neuropathy or another, or because neuropathy is often considered a secondary condition to some primary one (Ms. Moore's is due to diabetes and she campaigns for that, for example.)

I don't think our national/international organizations do enough to raise the profile of the condition, and have written about that, too.

And, the fact that many cases may be drug- or environmentally-induced does produce some degree of reticence among the establishment powers whose bottom lines may be at risk.

Here's two older threads that talk a lot about this--very insightful:

http://neurotalk.psychcentral.com/sh...riffith&page=3

http://neurotalk.psychcentral.com/sh...=Andy+Griffith
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