I was told I have hypersensitive nerves - but after the skin biopsy - it was change to small fibers neuropathy

Mite,

Sorry to gone a bit too far and "hijacked" your post. Thanks very much for the encouragement, and the same to you. Keep looking until you find "The One." It could be the next doc.

No, haven't tried a homeopath yet but think there might be some in this area. Will check it out. Appreciate the suggestion.

Best wishes,

Sheltiemom

Gluten very definitely can cause neuropathy, that's how I got my sensory neuropathy. Has anyone checked your B12 level? Gluten intolerance causes you to malabsorb your vitamins and minerals, which in turn will cause nerve damage. B12 very often is a hugh issue, as can be Vit D.

Do you feel better gluten free? I have been gluten free for 10 yrs, after about 4 yrs, I also had to be corn and soy free, then the nightshades went, followed by cruciferous veggies, and now, I eat no grains, no dairy...BUT, am doing much better.

Don't give up. Getting the gluten out of our systems is a slow job, and you must be sure that ALL gluten is gone. Read the labels on everything you put in your mouth, the processed foods are the worst. The fewer the ingredients, the better. I eat nothing processed anymore.

Hello Mite,

I had weird tingly and burning sensations in my foot before it went numb. I have a hereditary neuropathy CMT. I was diagnosed by nerve conduction study. Hoping you get some more answers soon.

--is just another way of saying that the nerves are damaged, but not dead yet, meaning they overreact and over-fire to what would ordinarily be innocuous stimuli. Allodynia is the term for pain produced from nromally non-painful stimuli, or spontaneously from no stimulus, and parastheses is the term for "weird" sensations produced in the same manner, but not necessarily painful ones (one can think of allodynia as a subset of parastheses).

Sjogren's, in my opinion, would only be a cause of neuropathy, if the ANA was elevated....better still, if the SSA and SSB were positive. In the absence of these markers, it is more likely the neuropathy is what is causing the sicca....then you are left with idiopathic neuropathy, and the frustration of having that condition. There are SO many reasons we can have neuropathy, even in the presence of some obvious reasons, I would not be too quick to jump.

This 'overactive nerve' theory is gaining a lot of popularity, (Fibro) since it can be bestowed on people rather cheaply.....'Here is some Lyrica' and that is the end of that.

Two very frustrating conditions to have....idiopathic neuropathy + autoimmune markers of no specific disease....ugh.

Yes, that is my clinical diagnosis ... Two words I hate "idiopathic" and "undifferentiated"

Mere

I can ditto everything you are all saying......I have it everywhere!!!! not a lot of numbness but pricks, water sensations, worms, stabbing every 30 seconds in a different spot, no area spared on body! Neurotin helped a lot, took away about 80% of them. The plus part is I also have an internal tremor in one leg. I also noticed (lately) my right side, especially leg and arm seem to have more sensations than left. All test were just fine! I am now thinking Parkinsons (no test detects that)........only because of my tremor.

Can anyone relate to the one side being worse than other in sensations or tremor factor?

I really think neuropathy symptoms are worse on the mind than the body!!

the worst thing we do is nothing if i would of been more persistant with the dr's maybe i would be walking do a MRI to check your back i had the same feeling numbness tingeling and two years later i lost my nerves from my waist down and the ability to walk so take matters into your own hands!

My husband is a lot like you. He gave up gluten, soy, dairy, nightshades, grains except for GF oatmeal, legumes and nuts. He has only beef, chicken, fish, certain fruits and veggies (very healthy!). He also takes methyl B12 (thanks to this board!), calcium, Vit D and Metagenics fish oil EPA-DHA 6:1 to help with inflammation. His pain level has decreased immensely! The homeopath said he has "leaky gut". He also takes Metagenics glutagenics before each meal to help heal this.

I'm so thankful for this board!

Take care,
Cindy