Try CIDP
Chronic Inflammatory Demyleinating Polyneuropathy

thank you nide44!!

I will look it up!

No you don't have the arthrits...(I do), but I have heard of developing RSD after the surgery....I am d@mned if I do, and d@amned if I don't do it....so here goes....I will be absent from here most of the Fall....awww, I am sure I will be missed.

For you, I guess if I were in your position, I would try whatever I could, and it seems you have good physicians.

I know I have some central pain stuff going on, since I was in a high speed head on many years ago....tinkered a bit with my head and spine, don'tcha know...never been right since and been in pain since. I took a hard hit to the head and my sternum was fractured....a good recipe for autonomic neuropathy right there.

I have decided to fix the little stuff, like the arthritis (and this surgery isn't little, it's fairly massive really, for a thumb.) I figured I can't do anything for the BIG stuff, other than some pain pump, which will probably do me in given my autonomic issues....so I may as well try to fix some of the little stuff.

I have vascular issues with my autoimmune disease, probably raynauds, so, I do have a bit of understanding of what you are going thru. I feel badly for you and hope you can get help, but there is always the danger of iatrogenic disease, and that is what scares me.