[Sheltiemom18]

Having no other recourse, am on a trial of supplements for small fiber sensory. The breakdown:

B12 as METHYLCOBALAMIN lozenges, 1000 mcg once a day = 1 mg
Found them at the supermarket's pharmacy section

B1 (thiamine) as BENFOTIAMINE, 80 mg one 2x a week, later on one 3x a week
Had to order these on-line - Doctor's Best brand

Multi-vitamin mineral complex, once a day

R-alpha lipoic acid (not the "S" formula) 100 mg once a week
Found these at an organic/specialty market in town

Too cautiouis to do the ultra high doses of these, although I read an abstract by Japanese researchers who said that in "very high" doses, B12 as methylcobalamin can be effective against peripheral neuropathy, but in rats I think.

Who knows if they'll do any good, but have nothing to lose at this point.

Cheers,

Sheltiemom

[lesley21]

I also take

Vit D3 5000mcg one a day
calcium 600mg one a day
Fish oil 4000 mg a day

[pabb]

Originally Posted by Sheltiemom

Having no other recourse, am on a trial of supplements for small fiber sensory. The breakdown:

B12 as METHYLCOBALAMIN lozenges, 1000 mcg once a day = 1 mg
Found them at the supermarket's pharmacy section

B1 (thiamine) as BENFOTIAMINE, 80 mg one 2x a week, later on one 3x a week
Had to order these on-line - Doctor's Best brand

Multi-vitamin mineral complex, once a day

R-alpha lipoic acid (not the "S" formula) 100 mg once a week
Found these at an organic/specialty market in town

Too cautiouis to do the ultra high doses of these, although I read an abstract by Japanese researchers who said that in "very high" doses, B12 as methylcobalamin can be effective against peripheral neuropathy, but in rats I think.

Who knows if they'll do any good, but have nothing to lose at this point.

Cheers,

Sheltiemom

When mrsd comes back from vaca she will be able to help you more than U,
in the mean time.....make sure that is methyl B12....prob. is not if you purchase at the grocery...and take it on an empty stomache, that is one hour before eating or two hours after eating and that dose is small for someone whom is potentially symptomatic....the thiamine is a B vitamin and i dont think stores well....more frequent dosing, ie daily, may be nec.good luck

[Sheltiemom18]

After putting up this threat, read something by MrsD about L-carnitine and CoQ10, so will be adding them to the regimen.

Thanks, Pabb and Lesley for your info. Hoping that the methylcobalamin I did buy that happened to be at the supermarket pharmacy is okay.

Sheltiemom