Hi - I also have this deep, bone, crushing pain. It feels as though the bones in my arms have been crushed and then the shards are continuing to be rubbed together - it is excruciating. I have an inflamation of the nerve base right off the spine (ganglioneuritis is one term for it). Or another desription is that there is a cable running throughthe middle of the bones in my arms and they are being pulled inside out. The problem is - there is NOTHING to be done for it. For me at least. Have you found anything that helps you? Are you seeing a neuro for this? Is it a newer symptom?

Hi I am back on the Forum again for the first time in 7 years. My life has changed much since the last time I posted. Too much to put into one post. But we can talk about that another time. My question is does anyone else suffer from this type of Deep crushing bone pain? What is thought to cause it? And what is done for it? Please any feedback at all would be helpful as I still have not been able to solve this problem. I am on a large amount of painkillers and absolutely detest it! Thank you and I've been thinking of you all for years. I hope those of you that I have communicated with in the past are doing well I would love to hear from any of you.