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Old 08-28-2010, 11:39 AM #5
Hermes Hermes is offline
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Join Date: Aug 2010
Location: Washington DC Area
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Hermes Hermes is offline
Junior Member
 
Join Date: Aug 2010
Location: Washington DC Area
Posts: 75
10 yr Member
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Quote:
Originally Posted by Marty SLC View Post
I have been getting bad bone pain in my upper legs and it's killing me! Deep down bone pain that zaps my strength in minutes.

Question,
Can small fiber PN cause this or is this another form of PN?
I have been getting that in my thighs mostly although in the calves sometimes. When it hits I can't breathe it is so bad. My DX is Polyneuropathy - Idiopathic. It took the doctors 16 months to come up with that. I had a skin biopsy to test for SFN but it came back negative so that would imply that I have large fiber PN except that the EMGs were normal. I've been up to Neurology at Johns Hopkins but no one knows what's wrong.
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