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09-20-2010, 09:30 PM | #1 | ||
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Junior Member
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Diagnosed with idiopathic sensory-motor nueropathy 2 months ago.I have had odd feelings in my right foot for a couple years. Now both feet get tingling sensations in them, weakness in both legs, left knee sometimes feels like it wants to give. I am 41 and the doctor said it is not a common finding in someone my age. I'm not diabetic, no thyriod problems, I'm not an alchololic. All my labs for common causes came back normal. He said sometimes it improves on it's own so he is going to do another NVC test in 10 months to see if there is improvement or worsening then we will go from there.
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09-21-2010, 07:41 AM | #2 | |||
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Wisest Elder Ever
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Hi, Lynn, and welcome to NeuroTalk.
Can we get some more details from you? Have you been tested for B12 and Vit D? Don't accept "normal", from your doctor because most lab ranges for these two critical nutrients are old and no longer accurate. Your B12 should be above 400, and vit D in the 50-80ng range. Doctors commonly call very low levels, "normal". Also what medications are you taking or have taken recently? Some drugs cause PN. http://neurotalk.psychcentral.com/thread122889.html That thread is in our Subforum at the top of the page, with other resources. Some homework is necessary here to understand how complicated PN can be. If you find your trigger you may be able to improve but doctors do not understand that yet, we've learned. There is, for example, a posting on the SubForum about hereditary neuropathies. Doctors don't offer testing for this early on, but as things get ruled out as causes, they may then examine this possibility...it is very expensive.
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Last edited by mrsD; 09-21-2010 at 08:31 AM. |
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09-21-2010, 09:00 PM | #3 | ||
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Junior Member
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The doctor ran tests for b12, folate, diabetes, arthritis, thyroid, paraprotienmia, ect. He listed the findings from the NCV as systemic sensory-motor pheripheral nueropathy with dymyelinating and axonal features. The EMG was negative for an active radiculopathy. Examination revealed absent DTR'S on both ankles, and stocking distribution hyoesthesia, he also made a notation that I have high arches. I take Mobic and flexiral 5mg if my back is acting up with muscle spasms. I have 2 discs that herniated 3 1/2 years ago, but he say's that is not what's causing the problem. He prescribed me lyrica, I will only take it in the evening because it makes me tired. I'm not a big fan of medications so I don't take them regularly. The nerves that are affected are the peroneal, tibial, and sural. The peroneal seems to be affected the most, do to no response for sensory or motor stimulation for the right side. and n/r for the sensory on the left side with decreased response for the motor on the left. all f-wave studies had prolonged latency with no response for the right peroneal nerve. Because my blood tests came back normal, he is not ruling out hereditary or the possiblity of a femoral nerve problem. I thought that femoral dysfunction usually only affects a single nerve, but I'm not a doctor so what do I know. Everything I've read online about sensory-motor nueropathy is that it is a system wide problem affecting the whole body.
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09-22-2010, 09:54 AM | #4 | ||
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Grand Magnate
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Quote:
Are there any others in your family who have symptoms? Thank you.
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