I didnt know this.

I've hardly been on line ths year because my motor pneuropoathy has gotten much worse (the sensory was already very bad), and just transferring to the wheelchair is a challenege, gastropareis much worse, etc.... bad thing, they cant do a thing to help me. BUT now I'm seeing double, just started couple weeks ago. I also have tons of trouble trinig to see close up (no, I didnt wear glasses before or need them - they dont help). They just chcked for a brain tumore, negative, the doctor said rarely he sees this, if just one nerve in the group of nerves that contrl each eye damaged then your vision goews wcky. They area trying to nail down which nerve it is right now, then they may be able to do some procdurews and make super epensive glasesw to hep out.

Anyway, if any of your are having vision problms, be sure to tell your doc you have PN... could be the culprit. Sorry if this is written badly, I honestly can bare read the sceen

I was just thinking about neuropathy and the eyes yesterday. I was having blurry vision in my right eye, which has happened before. I work for an optometrist and when this problem was bothering me for days, he examined my eyes and told me all he could find was a very, very early pre-cataract forming, which may not even surface for another 10 yrs, then added that I should not even notice it.

This has nothing to do with you I'm sure, yet may help another. I am gluten, nightshade, shellfish, all grains, and cruciferous veggie intolerant. A few weeks ago, a friend told me to try kale, that it is much like spinach and that I may like it for a change too. So, without researching kale, I tried it. When I eat something I am intolerant to, must be the first thing that hits me is brain fog, cause my thinking concepts disappear.

Out of the blue, my feet started buzzing, constantly. Then my carpal tunnel in the right hand, causing me to need my brace at night. 2 days later, my left hand joined the party. All this time, my tummy isn't happy, not at all. that's when it hit me yesterday morning..RESEARCH KALE! Kale is a cruciferous veggie, which I can't have. Then later in the day, the vision in my right eye went wacky, so yes, I do think neuropathy definitely can effect any nerve it wants.

Thankfully for me, when the intolerant food is stopped, and the symptoms begin to clear, things go back to normal for me, in time. The entire process takes at least 3 weeks if not longer.

I hope things improve for you.

There are forms of optic neuritis that exist. Some are genetic diseases. Some attached to MS diagnoses. Some occur in patients with very low B12. If the B12 is not fixed, blindness can result.

And if your blurred vision is vertical, that has been posted on Myasthenia Gravis forum as typical of MG. Horizontal or sideways blurring is not. ( I am not sure how verifiable that is however).

I get blurred when tired, but it is always temporary and goes away quickly. Long stints on the computer affect my distance vision. One consequence of getting older is a lag in focusing ability with various distances. Only an eye doctor can evaluate that. I wear trifocals and have for almost a decade.

Uveitis is also possible, but there are other symptoms with that.
(a friend of ours has this in one eye)
http://www.mayoclinic.com/health/uve...CTION=symptoms

I was wondering how you were doing since i havent seen you on here for a while. I was hoping you were feeling better and on to other things. Im sorry to hear about this latest developement with your vision. Hopefully its something that remits on its own or is easily treatable. Up to a couple of years ago once in a while i would get a period where my vision would dim, get darker and sometimes floaters. If i took a nap when i woke up it would be gone. If i didnt take a nap it would go away until i did. That has rarely happened over the last few years.

Bilberry is suppoosed to be the best supplement for vision. Blueberry extract helps as well. I have used both of these supplements to advantage as I am a high myope and with my Neuropathy in the past had left eye problems. Tearing, blurriness, greying. I have tested the supplements during an attack and both brought what felt like the eye muscles under control. I currently take Pomegranate Extract which has kept problems in this area at bay for the last year.

So far been to doc twice ths week, ruled out brain tumor but they can see abnoral area in the eye in one their tests, couple mor ehours of testsw on Friday. He's pretty sure is nerve damage from
the PN (or automic, which is severe) - and theres not much they can do... They have a specilist who works on nerves in eye and makes special glases tha sometmes can help I have to wait until tests this Frdaqy. This has affectd my sight (which again was perfect a couple of weeks ago) by the double vision, I have to cov er one eye or the ovther to be aqble to see single, and for some reason my reading (now lack there) by blurring.

Hi, kmeb -

See that your mood is "relaxed." You must be a very strong person in light of your problems.

So an optic nerve specialist has been called in to evaluate you and says there's nothing other than expensive glasses that can be done for your problem?

What MrsD says about vitamin B12 deficiency is correct. She's the best one to advise you about what type (methylcobalamin) and up to what dosage is safe.

Sorry, but I don't know anything about optic nerve surgery, so can't comment about this.

But just wanted to say that I wish you the best with everything you have going on.

Best wishes,

Sheltiemom

P.S. I've read at the Sjogrensworld website that there are meds for gastroparesis. It does affect some who have Sjogren's.

Why? Because once youre vision is done-in, it's insult to prior injuries!
Hey, put me in a hula hoop harness to get around?
It is not unknown tho:..
http://www.nlm.nih.gov/medlineplus/e...cle/000593.htm
http://www.lowvision.org/ischemic_optic_neuropathy.htm
I was lucky to see a neuro-opthamologist from the get go? There aren't many of them, nor are they easy to find [as listing as either neurologists or opthomologists] My own diagnosis was non-definitive? But sure gave me the respect that such damage can cause. My optomotrist recently looked over my records and went: This is what happened X & Y years ago! And I had to reply that there were set backs....
My eyeglass lenses changed dramaticallly about the time of my PN onset, then two years later[thyroid], and most recently? A new immune onslaught.
When one gets PN... It can be awful.. just getting up and walking is a challenge... But, it sure helps that you can see!
I realize that getting out and tested is hard for you. I Truly hope you have/get help and get tested and maybe get some relief/help!
Hugs and hope as always - j

HAVE BEEN TRYING TP TYPE RESPOMSE FOR OVER AN HOUR. GIVE UP SIGHT GETTIMG WPSE. AFTER4 ATTS, NOW SEE O0PTIC SPECIALIS. MOTPR PN GETTIMG MUCH WOSRE.FALL ALL THE TIME TRANSFERRI FROM WHEE'CHAIR AND TOO WEAK TO GET UO. ATUOONOMIC = DOWN TO ONE ENSURE A DAY TRROAST DOESNT SEEM TO BE WORKING ANY MOREL HAVE 5 DOC pppts in next 3 weeks. pn can really ruij your life.
oh kmrrsd/m my b12 is 1,2000,, and i atake no supplements at all.... my docs dont gave clue why - any ideAS?

Sorrry, cannot see to type coheretoypu