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Old 02-15-2007, 03:22 PM #1
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Default Thanks guys for replies

Glen, I have had all autonomic testing come up normal. I actually see a small fibre specialist who performed the sweat test,tilt table,valsalva and all nerve conduction studies. Ironically thet were all normal. And I remeber her saying that my bororeflex is working, but there is "subclinical sypmtoms that are hard to catch. I also sweat normally from everywhere she said.

I have gotten the diagnosis of "monophasic autoimmune PN through molecular mimicry"

But the fact remains that there is something going on in my head, probably from damage or healing,and it produces heat,and I get flushed for no reason. When this happens I also get anxiousness come over me very quickly,and I have to find a quiet place to practice my breathing.

Last edited by Aussie99; 02-15-2007 at 03:49 PM.
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Old 02-15-2007, 03:50 PM #2
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Default Aussie...i can see it now....

NORMAL?????I was sure it was 'x', 'y' or definitely 'z'! Well, we can always hope?

I dunno, at times I think/believe it's our MISSION to stumblefumble these docs and plain old humble their egos! [etc.] Shucks, it's not like we ASKED for all this 'stuff'!!!!!!!

What does IT all mean? Well, you great 'brains' have excluded all this 'stuff'....what about all this 'other stuff'?????

Do not EVER let them sit on their exclusions....the neuro profession SHOULD be that of processing the dratted EXCLUSIONS....and then getting to that elusive animal called diagnosis?

Do I have to 'e'mail you my solid OAK 2x4? Somehow I think you may have enven harder woods in your 'hood'?

Go get 'em! - HUGS - j
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Old 02-16-2007, 01:28 AM #3
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Default

Hi Aussie, Seeing all your blood & other tests all show negative, but you continue to improve as time goes on, then its probably fair to say that whatever has caused your nerve damage is well gone now buy the looks of it, may have been some sort a virus perhaps ??? that has made your immune system go hay wire, causing damage to your small nerves, as you would know we can get some really weird viral strains these days that can become that serious to cause some people to be hospitalized, compared to years ago it was just the same old flue symptoms every year, but i think that has defiantly changed over the years.

Increased burning is a typical sign of small nerve repair, thats what i went through whilst healing, there's no set pattern they can start burning at any old time, and the flushing could be your systems response to when your burning starts which would cause anyone to become anxious.
I hope it all settles down for you soon.

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Old 02-16-2007, 04:47 AM #4
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Default Thanks everyone

Geez, I am just happy to get it off me chest. It's been on my mind for the longest time,and I finally broke down and asked.

I appreciate the support.
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Old 02-16-2007, 11:05 PM #5
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Default Did you take any antibiotics before this happened?

I ask this because antibiotics in the fluoroquinolone class can sometimes have side effects that are similar to what you described and can last for years. Cipro, Levaquin, Avelox are just a few.- P.N. is a side effect that can be irreversible. cipain
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Old 02-17-2007, 04:53 AM #6
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Default yes

I had pretty bad bronchitis,and so did my husband. My husband went to GP,and he gave him antibiotics. I was expecting a relative to come visit,and had no time to go to GP for myself,so I swiped 2 tablets from his pack. The PN was literally just a few days away.

I don't know what sort they were though. I don't think I took enough to cause anything,as I only had 2. But I really don't know what they were, I just know they were not penicillan based as my husband is allergic.

I may be wrong,but I am under the impression that antibiotic damage is primarily lenghth dependant. I was ravaged by this whatever "autoimmune attack", from head to toe. Head being first.
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Old 02-17-2007, 07:54 AM #7
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Lightbulb this sounds allergic...

brain fog, and hot feelings.

I would look to your diet and try some elimination trials of common allergens.

Wheat, corn, dairy, chocolate, etc.

Do one at a time for 2 weeks and see if you feel better.

There might be some surprises there. One hint is that you should look at
whatever you crave/enjoy the most. We tend to react to and crave that
which makes us sick, believe it or not!
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Old 02-17-2007, 01:47 PM #8
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Default antibiotics

Some people have been ravaged by as little as one pill of these type of anti's. For some people that's all it takes. Just find out if it was a fluoroquinolone. If it wasn't, I wouldn't worry. If it was, google in the side effects. Many people have been injured and not even connected the two.
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