Hi

I have been suffering for 12 plus years
Muscle biopsy normal(mild denervation)several emg/ncv (normal, carpal tunnel) blood for Ace, pth, diabetes, thyroid, paraneoplastic panel, b12,spep serum and urine, stiff person syndrome, vgkc, normal

Vitamin d deficient and over years sed rate elevated( highest was 50) Ana was normal and so was ck and cpk.

Ct scans clean too. Of lung and stomach
I have had trace blood in urine for ten years. It discovered while facing bladder infections for a year. Uro did all kinds of test to find reason but nothing. Infections stopped but blood didn't.

Been to so many docs and even at utsouthwestern at Dallas but nothing.

I have from head to toe stabbing pain, sharp cutting zapps, pinching, pin promos tingle numbness. And patches of numb feeling. Goosebump like and left leg that won't stop vibrating and back an face.

My toes the pain feels like if u play in snow how excoriating pain it gets from cold. Throbbing. Tearing, water trickling down. At time water falling on feet feels like nails.

I also have severe cramping, spasms. Rapid spasms and severe twitching inevery inch.

Sharp twinges even all this is face scalp and throat.
My throat gets so tight like muscle bieng pulled from each end and it remains tight for days and makes swallowing difficult cause it's like trying to move thru a syiff muscle.

When bas in my arms just the swinging of arms when walking makes te rearing pain worse. Even any movent like bending it.

Does neuropathy get worse when moving.
My whole face, tongue and even my gums burn!
It migrates all day. Everyday is different