My neuropathy came from vitamin deficiency after GBS.

It seems like if that is the cause (vitamin deficiency), most people are lacking in B12.. but my B12 wasn't low until months into the neuropathy. It was my vitamin D that was dangerously low... I haven't met anyone who developed neuropathy from low vitamin D levels.. it is always B12. So, I'm not quite sure.. but it was due to the surgery and the fact that my body stopped absorbing correctly.

Failed lumbar spine surgery and sever osteoporosis (only in the area of the surgery).

Best of luck to you and all of us.

I believe, after pounding the keyboard for a few weeks (I used to pound the books; now I pound the keyboard - things change.) that my peripheral neuropathy was caused by peripheral edema in both feet.

My PCP missed it. The first neurologist missed it. I found it on my own.

Interestingly, of all the searches I did on peripheral neuropathy causes, peripheral edema never came up. Then by sheer accident - I don't even recall why - I searched peripheral edema. One of the first links was Wiki, and there - low & behold - was the answer:

Severe swelling can cause permanent damage to nerves, resulting in peripheral neuropathy.

There's a lot more to the story, but I'm trying to be brief in answering the question. Coulda been worse.

Doc

Mines is Ideopathic which makes me feel idiotic!
I just want a diagnosis........

mine is idiopathic too.......I would like a dx too, it is frustrating.....the truth is there is a reason, just not obvious enough in the year 2010 for Dr's to find!

Everthing has a cause.........

Ideopathic here as well. Is there a breakdown by percentage anywhere of the causes of PN vs ideopathic? I would guess just from my observations here that ideopathic runs a close 2nd or even ties diabetes.

Yes, it is actually called, the Neuro get tired looking for a cause and kicks us to the curb!!!

Sorry, for the "vent", just getting weary with the pain, etc.......

No apology needed! I understand, and I'm sure everyone else here does too.

MrsD

You talked about toxic neuropathy. For me flu shot speed things up and I have taken coprocessor and levaquin but never finished. Only took two days worth and couldn't finish due to side effects.
But was having symptoms before the levaquin.

Any case when I started lyrica. I took 50 mg at bedtime and woke up with certain sensations that were there but now were worse. Like my eat lobes buzzing and pinching that migrate all over

So any ones guess.

What is coprocessor? I can't say about the Levaquin at 2 days.
Stephen Fried's wife had a seizure after one tablet of Floxin!
(he wrote the book "Bitter Pills" and this).