Thank you mrs D

A lot of this stuff goes over my head. Any case will read on. Most of every test I researched and demanded. They were about to do a genetic pod test for different ones that Athena offers an that when I lost my insurance!

I am going to get the glucose tolerance done next week. Will be paying out of pocket. Hopefully wont be too expensive.

You know every where I read it says that when doing skin biopsy for neuropathy two or three spots of skin are taken from different parts of leg but my doc only took one spot on my ankle.

I tried gluten free when I did the detox nutritional stuff for 21 days and didn't see any difference and gave up but I have realized that's not enough time.

Plus the natrual medicine doctor did body impedance test. Never heard of this before. He put electrodes like EKG and recorded results. To tell me if I continue this way my healing level is down!! What ever that means

Thanku

Most doctors only look for elevated glucose readings. But in fact low readings precede the high ones. Low ones are hypoglycemic and are implicated in PN generation too.
Another more accurate way to evaluate your sugar metabolism is to do a fasting INSULIN level before you drink the glucose test solution. Elevated insulin levels indicate hypoglycemia, and insulin resistance.
Here are some graphs to illustrate the various results that can come up. Most doctors (unless endocrinologists looking for hypo readings), do not even consider low readings.
http://lightning.prohosting.com/~hyp...20Hypoglycemia

Your GTT should be at least 3 hrs long or more to show these dips accurately. A 2hr will not provide this information.

For myself I don't know the why. I have been so diagnosticly tested and seen so many specialties and many opinions. I may never know the why. I have tried to accept that and work on way to have a better quality of life through treatment. I do feel if I knew the why it would be easier to treat and manage of course

Mine is directly related to an autoimmune gluten intolerance. By the time we finally figured out gluten was the issue, unlike some, my neuropathy did not repair itself..I still am dealing with vitamin and mineral deficiencies after 10 yrs of gluten free.

Mine is sensory/small fiber neuropathy.

Supposedly autoimmune, Sjogren like Syndrome, with most systems affected, that said, I had restless leg as a kid....so, not convinced that something isn't hereditary as well. I got all the bad genes, except for my looks and brains (just kidding ).

My neuropathy came from vitamin deficiency after GBS.

It seems like if that is the cause (vitamin deficiency), most people are lacking in B12.. but my B12 wasn't low until months into the neuropathy. It was my vitamin D that was dangerously low... I haven't met anyone who developed neuropathy from low vitamin D levels.. it is always B12. So, I'm not quite sure.. but it was due to the surgery and the fact that my body stopped absorbing correctly.

The cause of my PN? I don't know.

After my left knee arthroscopic surgery in the early '90s, I found that my left foot would feel funny if I walked more than 30 mins. I thought I was going flat-footed or that I had some muscle atrophy. Throughout the '90s, after the knee surgery, I was trying to resolve what I perceived were malaise and fatigue. I experimented with diet, exercise, acupuncture, tai chi. In '05, I had an acute hyponatremia. That nearly did me in. In '08, I had a rash and the doctors fumbled around at a diagnosis, maybe shingles and post-herpetic neuralgia. A year after that, bottom of the foot pain and foot cramps, and some tingling-burning on the backs of the hands. My fatigue is now quite noticeable and inhibiting.

And here we are. Chronic poor nutrition may be a contributing factor. Flu vaccinations may be, as well.


P.S. I forgot shaman healer. I went to a shaman healer in San Rafael in Marin County.