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Old 10-25-2010, 04:08 AM #8
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Rrae Rrae is offline
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Location: i thought it was in my left pocket
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Rrae Rrae is offline
Grand Magnate
Rrae's Avatar
 
Join Date: Nov 2009
Location: i thought it was in my left pocket
Posts: 4,117
15 yr Member
Default We have an entire sub-forum here for SCS/Pain Pump

Quote:
Originally Posted by kokorogrl View Post
I've had PN for over a year now. Done all the testing and we can not find the cause. Tried the medications and for one reason or another they weren't good for me. Topamax did help a little bit and I liked it but after about 6 months my hair started to fall out so we had to dc it.

I finally got in to see a pain specialist yesterday who wants to try me on a Medtronic Neurostimulator. I've done some research on it and can't seem to find people using it for PN. Has anyone here heard of it being used for that? Has anyone tried it?

Thanks, Koko
Here is the link to the SCS/Pain Pump Forum here at NT
(it is listed as a sub-forum under the "Medications/Treatments" forurm)

http://neurotalk.psychcentral.com/fo...ysprune=&f=118

It is very active and full of information and people's experiences.
The 'stickies' at the top contain FAQ's and some very impressive links to sites that explain these units very well.

I've had mine for 9 months and it takes away about 75% of the horrible burning neuropathy in both legs

Caring
Rae
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