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Old 11-01-2010, 06:35 AM #8
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darlindeb25 darlindeb25 is offline
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darlindeb25 darlindeb25 is offline
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Join Date: Aug 2006
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And hereditary neuropathy syndromes are a real wild card--some progress slowly or not at all, some quickly, some involve die-back, some are more global, and often the same syndrome will affect different people in different ways.
Absolutely! We all share symptoms, and we all have individual symptoms. It's a "crap shoot!" Whatever will happen, will! Mine started in my hands, then my feet, up my legs, into my neck and shoulders..there was a time when my face would burn, I felt like I was on fire, yet if I looked in the mirror, there was no visible sign of the fire, not even red cheeks. I haven't had that symptom for a long time, knocking on wood!
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We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!
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