If you are gluten intolerant as you mentioned before, that very likely is your cause. Gluten causes us to malabsorp vitamins and minerals, in turn causing deficiencies, which in turn will cause nerves to die. If you go gluten free, and that means, totally gluten free, then the progression should slow if not stop. It may not go away...some epople whom go gluten free will see neuropathy symptoms gone, that didn't happen to me.

I also had to start taking Vit B12, which I have been taking for nearly 6 yrs. If I miss even 3 days of B12, symptoms will begin..my ataxia comes back, I have vibrations in my feet, drop foot returns..a number of symptoms.

Have your doctors run vitamin levels, and get a copy, don't rely on them to tell you where you are low. I find most doctors only look at what a lab highlights, and even if your level is just 1 point inside a "normal range" they do not highlight it. I found my Vit D to be low, and my ferritin..I started taking B12 on my own long before a doctor mentioned it to me.

We do have to be our own advocates. I fight taking meds, my neuro knows this. As of now, I am only on vitamin and minerals, no meds...I do have a lot of pain I deal with nearly daily in my neck/shoulders and headaches, but it's still livable so I just deal.