If Neuropathy caused by Gluten sensitivity wouldn't stomach problems be also present?

Thats a good question. I don't have big stomach issues either. But I have come across many with full positive celiac who only presented with neuronissues.
I had my blood done (negative)
I am not going to do endoscopy.I will try celiac free.
I am seeing that people are getting there stool test done but not sure If it's that valid. I am still looking into it.

How are u anyways. Hang in there!

I'm hanging in there, just getting so sick of having to push these Drs into doing these tests, why are they not coming up with them?! I feel like the Dr.(without the pay check!)

I am new to this post. Had my colon removed due to colitis, was on predisone for many years. Now I have this burning pain in my left toe and foot. It started off as mild, now it is on a scale of 8. Anyone had predisone and a similar problem?

I know what you mean. They sometimes forget that we are paying them to do a job, and that we as a consumer, have the right to expect a job well done on their part. I'm so lucky that my husband is so assertive. I bring him to all my appointments.

As for the celiac without the stomach issues, the answer is no, not all people have the stomach issues. I do have thme. But am not diagnosed with Celiac. Blood work was positive, but intestinal biopsy negative. I'm still giving the gluten free diet a try for 6 months, just to see what happens. Worth a try.

a good resource is: celiac.com

I definitely would in your case, being that you were positive in blood. I am actually not sure if celiac was tested for me, not sure of name of test to check for in my records.

I was thinking of trying Gluten free too, but what an undertaking, especially for the carb junkie that I am and the prices of Gluten Free ($8.00/ loaf of bread).......if I knew for sure I would do it. I am going to check with my neuro and see if I was tested for it.

The gluten peptide can escape the GI tract and enter the blood stream thru tiny channels in the wall of the intestine. These are called Zonulin channels:

http://ajp.amjpathol.org/cgi/content...act/173/5/1243

These channels also are implicated in the permeability of the blood brain barrier.

When open, the channels allow gliadin (from gluten) to cross into the bloodstream, and once it does, it can cause the immune system to respond.

People vary considerably in their response to gluten. Some get GI problems quickly and others don't. People with the Celiac genes can develop atrophy and damage to the lining of the intestines over time. But acquired gluten intolerance may not cause this damage at the same rate or at all.

I personally think that the heavy popular use of NSAIDs is promoting the gluten "epidemic". In the late '90's there were papers showing that suppressing Cox-2 in the epithelium of the intestines, allows more substances to cross which normally would be blocked by the Cox-2 cytokines. These inflammatory molecules are suppressed by NSAIDs and aspirin.

The change from past 1:3000 to 1:150 for gluten intolerance incidence now is remarkable. So I think the common use of NSAIDs are playing a role here.

Anyone with chronic PN that does not resolve and progresses should investigate this. We have had posters here who either with blood work or the stool examination tests have shown positive results to gluten.
You can learn more here:
http://sites.google.com/site/jccglutenfree/

There are other things like nightshade veggies with solanine toxin, which may impact the nervous system.
http://en.wikipedia.org/wiki/Solanine
I have seen some comments over the years that solanine builds up in tissues and is not excreted well, and I don't really have proof of that yet.
But for myself, burning is a symptom I have with potato consumption. So I avoid them 99%.

Going gluten free and combining the Zone diet, are compatible. The Zone reduces high glycemic carbs, which breads are commonly composed of. There are many gluten free products today that make the GF diet easier than ever. The Tinkyada pasta taste as good as any regular wheat pasta (other GF ones are not so good), and Bisquick now even has a new gluten free Bisquick. There are many GF products now like crackers, etc that regular grocery stores carry. Diamond makes an almond cracker that is quite good in fact.

So it is not so difficult. I think you need to do at least 3 months to show some improvement. You don't actually need doctor testing, to try this yourself. You can do it alone.

Hello, Eric, and welcome to NeuroTalk!

I wonder if you were on antibiotics for a while? Cipro or others?

I don't know about the pred... but you may have some deficiencies in B12 and Vit D to check on. If you go to the subforum above here, I have a thread on Supplements for PN and also Drugs that may cause PN listed.

This is the link to the subforum with lots of information to read:
http://neurotalk.psychcentral.com/forum119.html

And this is my B12 thread explaining that:
http://neurotalk.psychcentral.com/thread85103.html

The main forum here is mostly for conversation. The subforum is mostly for information.

As Mrs. D says, stomach issues are not always a partof gluten intolerance. Some people have no symptoms at all and are found intolerant from some other testing. Some only have neuro symptoms.

**

Another very useful site is http://sites.google.com/site/jccglutenfree/ Cara has put together a wonderful website for us to use.

I have double DQ1 genes, so many say I can't be celiac, although my doctors say I am, and I know I am, without a doubt. I had terrible stomach issues and my neuropathy began before I went gluten free 10 yrs ago.

My neuro ran a blood test for gluten sensitivity because I brought in an article by a GI that told what the test was. It came back negative but she only ran part of the tests. I'm going to talk to a GI this week about it just to rule it out. My wife has a friend who had PN symptoms for 8 years even spent a week at the Mayo clinic but they couldn't figure out what was wrong. Turns out she is gluten intolerant. All symptoms went away after about 4 weeks gluten free. I don't think that is my problem but I'll go talk to the GI just to make sure.