Thanks for your support. I know that you all can understand. And you are right, I need to be thankful and hopeful that he is at least referring me to someone who he thinks might be more qualified.

In the meantime, need to get my Lyrica dosage working better. When the meds are working it makes it all so much easier to deal with.

I'm so thankful for you all.

When THEY think THEY can't handle us and pass us on...well it takes lots of guts for a doc to admit this if even obtusely.
And yes! One does feel like either a hot potato or poison ivy! Maybe w/a bit of H1N1 thrown in?
Ignore all that, just go w/the 'program' whatever it is and if needed? Go out and seek second and third or more opinions elsewhere if needed.
Just stick to the facts? And simply state that: in your mind you KNOW 'something's' going on...and you want to find out as it's getting worse or the like. Admit [VERY BRIEFLY!] that it's scary and sell yourself to get this new doc or docs to WORK for YOU!
Hang in there and go get tests and more tests then even more tests! That's what's needed to get to the roots of your problem. What are tests and doc appointments compared to having a LIFE? Go get tested! Having any to many of the handicaps that PN's can cause? Well, you don't want any more for sure! The more you try now? It's possible that the less damage overall will be done in the long run.
Hugs and hope always! 's - j

It took 4 docs before I got a Dx. My primary care doc is good about know what he can take care of and when he needs to refer me to a specialist. I been to a Rheumatologist, a neurologist, a GI at home and a neuro and pain treatment doc at Johns Hopkins.

I think Neuros like the big ticket things,, MS, ALS,, and a few of the other, to them Neuropathy is nothing more then a nuisance,, wish they could live with it for a day to see how devastating it is

The first Neuro I saw at Johns Hopkins specializes in MS. I feel he lost interest after I was negative for that. He was going to refer me to a peripheral nerve specalist but when the skin biopsy came back negative for SFN I was told it wasn't indicated. That left me and the local neuro to try some meds he recomended. Kind of frustrating when you feel dropped by a doc who won't even refer you to someone else. My local neuro referred me back after she ran out of ideas for pain relief.

My biopsy was in the 15th percentile and they said that it is close enough to suggest Small fiber neuropathy. However my symptoms are mainly just in my face and the spots they took were from 3 spots on my leg. Im going to harvard next week and hopefully they will do another one behind my ear maybe closer to where my pain originates from.

So just make sure that you get the results and if its in a range close to mine it could still be SFN. Hope this helps, hang tough.