i agree with kitt. i started out with an emg/ncs in 2003 with mild to moderate and two years ago it progressed to severe on the emg/ncs. where else is there to go from there? ha! i dont see any point to that. i get get a full pulmonary function test every 3 months and that has been sinking steadily but its important to gauge that closely at this point so a testing i will go. for pn i dont think i need anymore emg/ncs's unless i improve and thats unlikely. i could see doing different tests if new symptoms develop or new breakthroughs are made.

--would have a lot to do with whether a "smoking gun" cause is found for one's symptoms early on, and whether or not one gets a firm diagnosis.

There are some problems which tend to evolve over time, and one may initially have negative or ambiguous test results that change over time, such as with many chronic autoimmune conditions (Cycleops can talk a lot about that). And, of course, there are some situations in which constant testing is warranted--such as blood sugar in diabetics--to ensure there are not acute crises.

The most difficult situations are those in which there aren't unequivocal results or diagnoses. The idiopathic are always wondering if another test down the road will show SOMETHING that might explain their symptoms--sometimes eventually it will, sometimes not . . .

The sad part about this is that economic considerations most often trump clinical considerations in determining how much testing gets done.

and test out the wazoo! Then, once they've gotten a dignosis they can DO something for? The MINIMUM of 'sophisticated' testing is done..and then the docs have to jump thru their hoops to 'treat you' and keep doing so. Usually supported by basic key blood test #'s and basic 'reflex' testing, plus your 'reports' on how you feel... That then puts YOU on the hot spot to be HONEST w/your doc about treatments! At times for US? That too can be a double-edged sword.
That old proverb? "Be careful what you wish for, you mite just get it"?
Standards I'm sure are different for each neuro issue and I'll bet there's a secret doctor's handbook out there that could tell us the whens and whyfores? BUT, I've not found it YET! I'm still looking!
BTW? Since I was diagnosed, I was tested the first 6 months VERY CAREFULLY, after that? Not much, most of my tests, and bloodwork are ordered by my other docs for my 'other' medical problems. What I DO try to do tho, is be sure my other docs get copies of the others' bloodworkups. Why? Mite just be something there that could help in another quarter!
's - j