Grand Magnate
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Join Date: Aug 2006
Posts: 4,440
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Grand Magnate
Join Date: Aug 2006
Posts: 4,440
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Quote:
Originally Posted by Raglet
it depends why you are having it done. I suddenly had trouble lifting my left leg, so I needed to have the nerves in my hip done to see if it was the neuropathy affecting my hip, or something else. It was the neuropathy. Also, having had my hands/arms done has indicated that the motor problems that I have with my hands at this stage are central rather than peripheral in nature. It has always shown that I am not far away from having neuropathy in my hands as my results are heading out of the normal range (sensorimotor axonal neuropathy).
So, sometimes it is more than just showing progression. Sometimes it is to dx what is going on, and this can need doing even once an initial dx of neuropathy has been made as not all issues can be blames on the neuropathy.
cheers
raglet
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I was speaking solely about CMT and the need for more EMG/NCV testing. We already know what's happening and why it's happening. That is far different than other people with neuropathies. There more than likely is a reason to keep on doing EMG/NCV's on them. But that is not true for people with a confirmed diagnosis of CMT.
CMT is hereditary and it affects the Peripheral Nervous System (PNS) which is outside of the Central Nervous System (CNS). It is also known as Hereditary Motor Sensory Neuropathy (HMSN). You do not all of a sudden start having trouble with feet, legs, arms, hands. It usually is a slow progression.
And no, not all issues can be blamed on the neuropathy. A person with CMT is not immune to a host of other diseases as well.
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Kitt
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"It is what it is."
Last edited by Kitt; 11-14-2010 at 08:28 PM.
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