mrs D - thank you SO MUCH for your input and recommendations. I will definately take your advice and keep you posted on progress!!

Did the Neuropathy Support Formula help? I am looking at it for my MMN (anything that will help motor nerves regenerate!) but the neuropathytreatmentgroup.com web site makes it look like snake oil. I am encouraged that Mrs. D liked the combination of ingredients. Mrs. D, you might find the clinical study abstracts cited by the manufacturer interesting; they're at http://neuropathytreatmentgroup.com/...inical-studies (click on the "show" buttons to reveal details.) Most of them have to do with mega-dosing with the 3 main ingredients: their particular kind of B1 (benfotiamine), methylcobalamin (B12), and alpha-lipoic acid; most of those studies were done in the mid-90s on rats and mice.

I know the ingredients are good for nerves, now it just remains to be seen if the actual product is as it claims. That's what brought me here.

Since this thread started, we have learned that lipoic acid is best absorbed in another form, called stabilized. This is a form that is highly water soluble and therefore, less is needed per dose,
and it is far more effective.

This formula does not give this ingredient as "stabilized".
So expecting a huge response from that one is not likely.

Some people need more of one thing than another. Some people may react negatively to one thing in a mixture like that and then have to stop the whole thing, thereby losing any benefits from the other ingredients.

In pharmacy we call this "shot gun" therapy. It may work, or it may partially work, or it may have to be stopped for some reason.

For example, I react to high dose lipoic acid... so I have to keep it at 100mg a day. At that dose using stabilized, I do get response, and had some good HbA1C results this last testing time. So that is just one example.

It can be difficult figuring out what is going on with PN however, and so we then see all sorts of "remedies" posted on our forum as a result.

I personally think people with Chemo damage, need different things than those with nutritional deficiencies, or autoimmune damage.

I tend to like to buy my supplements separately, and I choose quality manufacturing places with a good history of care and accuracy. When a new thing comes out we often don't know much about who makes it, for example. So there are many reasons to be careful. But being careful does not mean throwing away potential.

Is there a thread addressing autoimmune damage specifically?

Thanks!

Not yet.... Autoimmune damage typically hits the axons and then
there is inflammation of the cells because cytokines are signaled to come to the damage.

So antioxidants, are helpful.
Grapeseed Extract
Vit C (this has shown promise in preventing RSD after trauma)
Lipoic acid

These are examples of inflammatory suppressing supplements.
There are others too. Antioxidants also are in foods, green tea, yerba mate tea, and colorful foods like blueberries and strawberries, etc.

Today there was link posted to here:
http://www.jneurosci.org/content/31/28/10128.abstract

This is the mito thread:
http://neurotalk.psychcentral.com/thread80999.html

My Nerve Support Formula has basically the same ingredients and amounts. But directions says to take with meals. Now I am confused.

Markneuro1, I share your unease about the "Neuropathy Treatment Group".

As far as I can see from the site there is no evidence that any health professionals are involved with it.

There are lots of "special just for you" offers there as well as many unsupported testimonials, both of which are red flag warnings for me.

I was cynically amused to note that the site asserts that "Our manufacturing facility is FDA approved". This conflicts with its disclaimer : "The statements made on our websites have not been evaluated by the FDA".

I don't live with peripheral neuropathy but if I did the Neuropathy Treatment Group would be very low on my list of sources of support

If you look at the reviews on Amazon.com about their product most say it did nothing for them and the reps hounded them to buy more.

Cliffman